ERIC Number: EJ1040321
Record Type: Journal
Publication Date: 2014-Oct
Pages: 15
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1362-3613
EISSN: N/A
What Should Autism Research Focus Upon? Community Views and Priorities from the United Kingdom
Pellicano, Elizabeth; Dinsmore, Adam; Charman, Tony
Autism: The International Journal of Research and Practice, v18 n7 p756-770 Oct 2014
The rise in the measured prevalence of autism has been accompanied by much new research and research investment internationally. This study sought to establish whether the pattern of current UK autism research funding maps on to the concerns of the autism community. Interviews and focus groups were conducted with autistic adults, family members, practitioners and researchers to identify their priorities for research. We also captured the views of a large number of stakeholders via an online survey. There was a clear disparity between the United Kingdom's pattern of funding for autism research and the priorities articulated by the majority of participants. There was general consensus that future priorities for autism research should lie in those areas that make a difference to people's day-to-day lives. There needs to be greater involvement of the autism community both in priority setting and in research more broadly to ensure that resources reach where they are most needed and can make the most impact.
Descriptors: Autism, Research, Research Needs, Educational Research, Public Opinion, Community Attitudes, Funding Formulas, Interviews, Focus Groups, Needs Assessment, Adults, Researchers, Professional Personnel, Parent Surveys, Online Surveys, Knowledge Level, Participant Satisfaction, Research Opportunities, Community Surveys, Foreign Countries, Medical Research, Stakeholders
SAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: http://bibliotheek.ehb.be:2814
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: United Kingdom
Grant or Contract Numbers: N/A