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Direct linkSkyrme, Sarah – Child Care in Practice, 2017
Semi-structured interviews were conducted with boys and young men who have Duchenne muscular dystrophy (DMD), a severe, degenerative condition that only affects boys. The main focus of the interviews was to explore how the participants thought they might make a decision to take part in medical research. To better understand this, aspects of the…
Descriptors: Semi Structured Interviews, Males, Genetic Disorders, Neurological Impairments
