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Direct linkFletcher-Watson, Sue; Adams, Jon; Brook, Kabie; Charman, Tony; Crane, Laura; Cusack, James; Leekam, Susan; Milton, Damian; Parr, Jeremy R.; Pellicano, Elizabeth – Autism: The International Journal of Research and Practice, 2019
Participatory research methods connect researchers with relevant communities to achieve shared goals. These methods can deliver results that are relevant to people's lives and thus likely to have a positive impact. In the context of a large and growing body of autism research, with continued poor implementation, and some evidence of community…
Descriptors: Autism, Communities of Practice, Participatory Research, Empathy
Pellicano, Elizabeth; Dinsmore, Adam; Charman, Tony – Autism: The International Journal of Research and Practice, 2014
The rise in the measured prevalence of autism has been accompanied by much new research and research investment internationally. This study sought to establish whether the pattern of current UK autism research funding maps on to the concerns of the autism community. Interviews and focus groups were conducted with autistic adults, family members,…
Descriptors: Autism, Research, Research Needs, Educational Research
Barrett, Barbara; Byford, Sarah; Sharac, Jessica; Hudry, Kristelle; Leadbitter, Kathy; Temple, Kathryn; Aldred, Catherine; Slonims, Vicky; Green, Jonathan; Bourne, Katy; Blazey, Laura; Holt, Clare; Kapadia, Dharmi; MacDonald, Wendy; Pickles, Andrew; White, Lydia; Houghton, Tori; Taylor, Carol; Cutress, Anna; Leach, Sue; Le Couteur, Ann; McConachie, Helen; Barron, Sam; Colmer, Ruth; Randles, Sarah; Beggs, Karen; Collino, Julia; Howlin, Pat; Charman, Tony – Journal of Autism and Developmental Disorders, 2012
Autism spectrum disorders (ASD) are associated with a substantial economic burden, but there is little evidence of the costs in the early years; the period in which children are increasingly likely to be diagnosed. We describe the services used by 152 children aged 24-60 months with autism, report family out-of-pocket expenses and productivity…
Descriptors: Community Services, Autism, Family Characteristics, Costs
