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Lahaije, Siméon T. A.; Luijkx, Jorien; Waninge, Aly; van der Putten, Annette A. J. – Research and Practice for Persons with Severe Disabilities, 2023
In disability research, there is an increased focus on the well-being of families with a child with a disability, also known as family quality of life (FQOL). However, the well-being of families with a child with profound intellectual and multiple disabilities (PIMD) has not yet been explored, even though their well-being may be affected by the…
Descriptors: Well Being, Family Involvement, Students with Disabilities, Intellectual Disability
Wallace, Sarah J.; Worrall, Linda; Rose, Tanya A.; Alyahya, Reem S. W.; Babbitt, Edna; Beeke, Suzanne; de Beer, Carola; Bose, Arpita; Bowen, Audrey; Brady, Marian C.; Breitenstein, Caterina; Bruehl, Stefanie; Bryant, Lucy; Cheng, Bonnie B. Y.; Cherney, Leora R.; Conroy, Paul; Copland, David A.; Croteau, Claire; Cruice, Madeline; Dipper, Lucy; Hilari, Katerina; Howe, Tami; Kelly, Helen; Kiran, Swathi; Laska, Ann-Charlotte; Marshall, Jane; Murray, Laura L.; Patterson, Janet; Pearl, Gill; Quinting, Jana; Rochon, Elizabeth; Rose, Miranda L.; Rubi-Fessen, Ilona; Sage, Karen; Simmons-Mackie, Nina; Visch-Brink, Evy; Volkmer, Anna; Webster, Janet; Whitworth, Anne; Le Dorze, Guylaine – International Journal of Language & Communication Disorders, 2023
Background: Evidence-based recommendations for a core outcome set (COS; minimum set of outcomes) for aphasia treatment research have been developed (the Research Outcome Measurement in Aphasia--ROMA, COS). Five recommended core outcome constructs: communication, language, quality of life, emotional well-being and patient-reported…
Descriptors: Interpersonal Communication, Communication Skills, Aphasia, Foreign Countries
Van der Meulen, Anne Pier S.; Taminiau, Elsbeth F.; Hertogh, Cees M. P. M.; Embregts, Petri J. C. M. – International Journal of Developmental Disabilities, 2022
The application of restrictions plays a great part in daily support of people with moderate intellectual disability (ID). In this study we examine the evaluation of relatives of restrictions applied to their family members with moderate ID. Relatives are key and permanent figures in the lives of people with moderate intellectual disability.…
Descriptors: Family Attitudes, Moderate Intellectual Disability, Barriers, Well Being
Zonneveld, Ellen; van Schelven, Femke; Boeije, Hennie – Journal of Applied Research in Intellectual Disabilities, 2023
Background: The COVID-19 pandemic poses risks to the quality of life (QoL) of relatives of individuals with intellectual disabilities. This paper investigates relatives' QoL and associated risk and buffering factors before and during the pandemic. Method: Surveys were administered to three samples of relatives in the Netherlands in 2019 (N = 105)…
Descriptors: COVID-19, Quality of Life, Pandemics, Intellectual Disability
Thalen, Marloes; van Oorsouw, Wietske M.W.J.; Volkers, Karin M.; Embregts, Petri J.C.M. – Journal of Intellectual Disabilities, 2023
Background: Information regarding the common-daily support needs of older people with intellectual disabilities remains scarce, despite the necessity of such knowledge to the provision of adequate support. This exploratory study aims to identify the most important support needs. Method: A mixed-method design was conducted, in which 11…
Descriptors: Foreign Countries, Older Adults, Intellectual Disability, Needs
van Ewijk, Lizet; Bootsma, Tjitske M. C.; van Rijssen, Maren; ter Wal, Nicole – International Journal of Language & Communication Disorders, 2021
Background: Subjective well-being (SWB) and quality of life (QOL) are intricately related constructs. Recent research shows both constructs share some facets, but are distinct entities. It is unclear, both internationally and in the Netherlands, if and how SLTs address SWB in clinical practice. The current study was set up to explore Dutch SLTs'…
Descriptors: Speech Language Pathology, Allied Health Personnel, Speech Therapy, Well Being
Nieuwenhuijse, A. M.; Willems, D. L.; van Goudoever, J. B.; Olsman, E. – International Journal of Developmental Disabilities, 2022
Persons with Profound Intellectual and Multiple Disabilities (PIMD) are supported by professional caregivers for a large part of their lives. However, the perspectives of professional caregivers on good or poor Quality of Live (QoL) of persons with PIMD have hardly been explored. To explore the perspective of professional caregivers on QoL of…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Caregiver Attitudes, Caregivers
de Geus-Neelen, Karin C. J. M.; van Oorsouw, Wietske M. W. J.; Hendriks, Lex A. H. C.; Embregts, Petri J. C. M. – Journal of Intellectual & Developmental Disability, 2019
Background: Staff and relatives often act as advocates for people with severe to profound intellectual disability (ID). Since staff and relatives make proxy judgements about quality of life for people with severe to profound ID, it is important to know how well the perceptions of the two groups correspond with each other. Method: Fifty-one…
Descriptors: Severe Intellectual Disability, Quality of Life, Decision Making, Empowerment
Giaconi, Catia; Bianco, Noemi Del – Research on Education and Media, 2017
The purpose of this paper was to analyse the core of the quality of life, intended as a complex construct with specific and transversal features. The approach to this issue, by linking it to the great emergency of disability in adulthood, pushes the analysis into deep conceptual pedagogical reflections, which lead the authors' initial reflections…
Descriptors: Disabilities, Quality of Life, Intervention, Aging (Individuals)
OECD Publishing, 2018
Over the past century, technological development and better access to services has resulted in significant improvements to quality of life. Despite this, however, levels of stress, anxiety and depression are rising. Education can play a role in supporting well-being during and beyond schooling. Schools are increasingly concerned not only with…
Descriptors: Educational Trends, Well Being, Quality of Life, Self Esteem
Krabbenborg, Manon A. M.; Boersma, Sandra N.; van der Veld, William M.; van Hulst, Bente; Vollebergh, Wilma A. M.; Wolf, Judith R. L. M. – Research on Social Work Practice, 2017
Objective: To test the effectiveness of Houvast: a strengths-based intervention for homeless young adults. Method: A cluster randomized controlled trial was conducted with 10 Dutch shelter facilities randomly allocated to an intervention and a control group. Homeless young adults were interviewed when entering the facility and when care ended.…
Descriptors: Randomized Controlled Trials, Intervention, Young Adults, Homeless People
Vos, P.; De Cock, P.; Petry, K.; Van Den Noortgate, W.; Maes, B. – Journal of Intellectual Disability Research, 2013
Background: The measurement of subjective well-being in people with severe and profound intellectual disabilities (ID) is a difficult challenge. As they cannot self-report about their life satisfaction, because of severe communicative and cognitive limitations, behavioural observations of their emotions and moods are important in the measurement…
Descriptors: Emotional Response, Psychological Patterns, Well Being, Severe Mental Retardation
Markantoni, Marianna; van Hoven, Bettina – Journal of Rural Studies, 2012
Over the past 20 years, rural areas in Western societies have transformed from a production to a consumption space. Much research on rural diversification and revitalization has focused on farmers and their wives. However, it is useful to examine side activities run by non-farm women which have slowly emerged in the last few years. In view of…
Descriptors: Foreign Countries, Females, Entrepreneurship, Rural Population
Psychometric Evaluation of the Dutch Version of the Mood, Interest and Pleasure Questionnaire (MIPQ)
Petry, Katja; Kuppens, Sofie; Vos, Pieter; Maes, Bea – Research in Developmental Disabilities: A Multidisciplinary Journal, 2010
Recently, several instruments have been developed to measure the subjective component of the quality of life (QOL) of people with profound intellectual and multiple disabilities (PIMD). A next step, however, must be the further validation of these instruments. The present study aimed at evaluating the psychometric properties of one of these…
Descriptors: Check Lists, Multiple Disabilities, Severe Mental Retardation, Quality of Life
Verbakel, Ellen; DiPrete, Thomas A. – Social Forces, 2008
Comparisons of wellbeing between the United States and Western Europe generally show that most Americans have higher standards of living than do Western Europeans at comparable locations in their national income distributions. These comparisons of wellbeing typically privilege disposable income and cash transfers while ignoring other aspects of…
Descriptors: Working Hours, Living Standards, Quality of Life, Labor Market
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