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Well-Being of Families with a Child with Profound Intellectual and Multiple Disabilities
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Lahaije, Siméon T. A.; Luijkx, Jorien; Waninge, Aly; van der Putten, Annette A. J. – Research and Practice for Persons with Severe Disabilities, 2023
In disability research, there is an increased focus on the well-being of families with a child with a disability, also known as family quality of life (FQOL). However, the well-being of families with a child with profound intellectual and multiple disabilities (PIMD) has not yet been explored, even though their well-being may be affected by the…
Descriptors: Well Being, Family Involvement, Students with Disabilities, Intellectual Disability
"I Love My Sister, but Sometimes I Don't": A Qualitative Study into the Experiences of Siblings of a Child with Profound Intellectual and Multiple Disabilities
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Luijkx, Jorien; van der Putten, Annette A. J.; Vlaskamp, Carla – Journal of Intellectual & Developmental Disability, 2016
Background: Many previous family quality of life studies have relied on parental information for understanding if and how having a sibling with profound intellectual and multiple disabilities (PIMD) influences the sibling's quality of life. In the current study, children had the opportunity to describe both positive and negative aspects of having…
Descriptors: Siblings, Severe Intellectual Disability, Multiple Disabilities, Sibling Relationship