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Direct linkLoo, Joanne C. Y.; Boot, Erik; Corral, Maria; Bassett, Anne S. – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Many individuals with intellectual disabilities and their caregivers struggle to provide accurate and complete information to healthcare providers. Method: The present authors provided personal medical information cards (PMICs) containing contact and medical information to 52 Canadian adults with 22q11.2 deletion syndrome, a genetic…
Descriptors: Adults, Congenital Impairments, Genetic Disorders, Intellectual Disability
