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Direct linkPereira, Rafaela Catelan Martins; Apis, Aline; dos Santos, Thamires Rosa; de Avó, Lucimar Retto da Silva; Pilotto, Rui Fernando; Germano, Carla Maria Ramos; Melo, Débora Gusmão – Journal of Intellectual Disabilities, 2023
This cross-sectional and descriptive study examined the family quality of life (FQoL) among 72 Brazilian families who have children with Williams syndrome, a rare genetic disorder in which most individuals have an intellectual disability, usually mild. Data were collected using sociodemographic and clinical data forms and the Beach Center FQoL…
Descriptors: Foreign Countries, Quality of Life, Genetic Disorders, Intellectual Disability
