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Urbanowicz, Anna; Downs, Jenny; Bebbington, Ami; Jacoby, Peter; Girdler, Sonya; Leonard, Helen – Research in Autism Spectrum Disorders, 2011
This study assessed factors that could influence equipment and respite services use among Australian families caring for a girl/woman with Rett syndrome and examined relationships between use of these resources and the health of female caregivers. Data was sourced from questionnaires completed by families (n=170) contributing to the Australian…
Descriptors: Mothers, Physical Health, Caregivers, Respite Care
Burton-Smith, Rosanne; McVilly, Keith R.; Yazbeck, Marie; Parmenter, Trevor R.; Tsutsui, Takako – Journal of Intellectual & Developmental Disability, 2009
Background: As part of an international, multicentre project, the service and support needs of Australian family carers were investigated. Method: A sample of 1,390, 448 family carers completed a self-report survey, including an adaptation of the Family Needs Survey (FNS) and several open-ended questions. A mixed method design was used, employing…
Descriptors: Family Needs, Access to Information, Respite Care, Foreign Countries