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Lilley, Rozanna; Lawson, Wenn; Hall, Gabrielle; Mahony, Joanne; Clapham, Hayley; Heyworth, Melanie; Arnold, Samuel; Trollor, Julian; Yudell, Michael; Pellicano, Elizabeth – Journal of Autism and Developmental Disorders, 2023
In this paper, we report on a participatory oral history study documenting the lives of late-diagnosed autistic adults in Australia. We interviewed 26 autistic adults about their life history and the impact of late diagnosis. All were diagnosed after the age of 35, growing up in an era when autism was not well known. Using reflexive thematic…
Descriptors: Foreign Countries, Oral History, Autism Spectrum Disorders, Adults
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Lilley, Rozanna; Lawson, Wenn; Hall, Gabrielle; Mahony, Joanne; Clapham, Hayley; Heyworth, Melanie; Arnold, Samuel R. C.; Trollor, Julian N.; Yudell, Michael; Pellicano, Elizabeth – Autism: The International Journal of Research and Practice, 2022
In this article, we report on an oral history study documenting the lives of autistic adults in Australia. This qualitative study, co-produced with autistic researchers, offers insight into the lived experiences of autistic adults diagnosed in mid-to-late adulthood. Oral history methodology was utilised to understand the experiences of autistic…
Descriptors: Autobiographies, Oral History, Autism Spectrum Disorders, Adults
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Lilley, Rozanna; Sedgwick, Mikala; Pellicano, Elizabeth – Autism: The International Journal of Research and Practice, 2020
This is the first qualitative study to investigate experiences of, and attitudes towards, autism in Aboriginal and Torres Strait Islander communities in Australia. Understanding the complexity of these attitudes is crucial because they influence the recognition of autism as well as the ways in which individuals and families are supported. Twelve…
Descriptors: Autism, Pervasive Developmental Disorders, Attitudes toward Disabilities, Indigenous Populations
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Lilley, Rozanna – International Journal of Inclusive Education, 2015
This article investigates the experiences of students diagnosed with autism who change schools during the early primary years in New South Wales (NSW), Australia. Using the narratives of eight mothers, the article documents the circumstances leading to school change, usually towards more segregated provision. Mothers highlighted the difficulty of…
Descriptors: Inclusion, Autism, Pervasive Developmental Disorders, Student Mobility