ERIC Number: EJ953182
Record Type: Journal
Publication Date: 2011
Pages: 23
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-0951-8398
EISSN: N/A
At Home with Disability: One Family's Three Generations Narrate Autism
Mouzourou, Chryso; Santos, Rosa Milagros; Gaffney, Janet S.
International Journal of Qualitative Studies in Education (QSE), v24 n6 p693-715 2011
We examined the lived experiences of a Cypriot family with a young child with autism. Semi-structured interviews with parents, siblings, and extended family members across three generations and observations of the family's daily activities were the primary data-generating methods. Critical events related to the disability diagnosis, the mother's decision to undertake a significant role in the child's education following negative interactions with professionals, and the family's daily accommodations to the child's needs emerged in narratives of multiple participants. Family narratives reflect the polyphony of experiences and responses shared by participants. The study illuminates the complexities of this experience and offers opportunities to rethink the interplay of disability, family, and culture in the context of research and practice. (Contains 2 tables, 1 figure and 2 notes.)
Descriptors: Siblings, Autism, Family Relationship, Interviews, Family Attitudes, Parent Attitudes, Caregiver Attitudes, Family Life, Home Schooling, Group Experience, Case Studies, Child Care, Coping, Family Characteristics, Normalization (Disabilities), Disabilities, Children, Foreign Countries, Phenomenology
Routledge. Available from: Taylor & Francis, Ltd. 325 Chestnut Street Suite 800, Philadelphia, PA 19106. Tel: 800-354-1420; Fax: 215-625-2940; Web site: http://www.tandf.co.uk/journals
Publication Type: Journal Articles; Reports - Research
Education Level: Adult Basic Education; Adult Education; Elementary Education
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Cyprus
Grant or Contract Numbers: N/A