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Maria Cristina Murano – Research Ethics, 2024
Over the last three quarters of a century, international guidelines and regulations have undergone significant changes in how children are problematised as participants in biomedical research. While early guidelines enacted children as vulnerable subjects with diminished autonomy and in need of special protection, beginning in the early 2000s,…
Descriptors: Biomedicine, Research Methodology, Public Health, Guidelines
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Sapfo Lignou; Mark Sheehan; Ilina Singh – Research Ethics, 2024
Many research institutions and funders have recently stated their commitment to actively support and promote 'Equality, Diversity and Inclusion' (EDI) in various aspects of health research including Patient and Public Involvement (PPI). However, translating this commitment into specific research projects presents significant challenges that…
Descriptors: Foreign Countries, Medical Research, Patients, Inclusion
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Loretta Gasparini; Shaun Ziegenfusz; Natalie Turner; Suze Leitão; Michelle C. St Clair; Emily Jackson – International Journal of Language & Communication Disorders, 2025
Background: Eighty-five percent of medical research goes to waste, partly because it is not appropriately communicated to stakeholders. This represents a critical issue for the research community, especially because individuals who are impacted by research should be able to readily access that research. Making research findings accessible to key…
Descriptors: Language Impairments, Information Dissemination, Medical Research, Access to Information