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Ethics Review of Artistic Research: Challenging the Boundaries and Appealing for Care
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Hugo Boothby – Research Ethics, 2024
In 2019, a new national Ethics Review Authority (Etikprövningsmyndigheten, EPM) was created in Sweden. In 2020, Sweden's "Ethical Review of Research Involving Humans Act" was revised, tightening this legislation, and increasing penalties for its infraction. This article draws on empirical material generated by artistic research conducted…
Descriptors: Foreign Countries, Musicians, Disabilities, Legislation
Working Together as Scientific and Experiential Experts: How Do Current Ethical PAR-Principles Work in a Research Team with Young Adults with Developmental Language Disorder?
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Karijn Aussems; Jet Isarin; Alistair Niemeijer; Christine Dedding – Educational Action Research, 2024
Participatory Action Research (PAR) brings unique ethical challenges. Scholars have developed seven ethical principles to address these challenges. So far, little has been published on how these ethical principles (are put to) work in different fields. We used the principles to evaluate our collaboration with co-researchers with developmental…
Descriptors: Foreign Countries, Action Research, Participatory Research, Researchers
Ethics of Research Engagement with Deaf People. A Qualitative Evidence Synthesis
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Tomasz Krawczyk; Jan Piasecki; Mateusz Wasylewski; Marcin Waligora – Journal of Deaf Studies and Deaf Education, 2024
In this article, we explore ethical issues of Deaf people's engagement in research. To focus on the perspectives of Deaf people, we investigated existing qualitative and mixed methods research within a qualitative evidence synthesis. Our synthesis is based on a systematic database search (Scopus, PubMed) and reference check of included papers…
Descriptors: Ethics, Research, Deafness, Attitudes
Co-Producing Ethics Guidelines Together with People with Learning Disabilities
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Mary Bottomley; Jodie Bradley; Lisa Clark; Bryan Collis; Bojana Daw Srdanovic; Victoria Farnsworth; Annie Ferguson; Dan Goodley; Andrew Fox; Nikita K. Hayden; Charlotte Lawthom; Rebecca Lawthom; Claudia Magwood; Robert McLean; Ian Middleton; Alison Owen; Matty Prothero; Simon Rice; Simon Richards; Katherine Runswick-Cole; Kelly Scargill; Rohit Shankar; Toni Ann Wood – British Journal of Learning Disabilities, 2024
Background: We are a research team of clinical, academic and advocacy-based researchers with and without learning disabilities, working on the "Humanising Healthcare" (for people with learning disabilities) project. The project is dedicated to finding and sharing healthcare practices that enhance the lives of people with learning…
Descriptors: Ethics, Learning Disabilities, Guidelines, Researchers
The Lives of Early Career Researchers. HEPI Report 169
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Debra Cureton; David Grundy; Sarah Howard; Anastassiya Mahon; Blessing Marandure; Anna Meier; Joanne Mills; Louise Oldridge; Maranda Ridgway; Gemma Tidman; Rebecca Williams; Jing Zhao – Higher Education Policy Institute, 2024
In 2023, the British Academy commissioned 11 members of its Early Career Researcher Network to write about their experiences of life and work in UK higher education. The essay collection shines a light on the voices, perspectives and journeys of early career researchers, poignantly showcasing the realities and challenges faced by researchers at…
Descriptors: Researchers, Novices, Experience, Barriers
Big Ideas That Changed the World of Disability: Exploring Theory with Self-Advocates
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Nicola Grove; Simon Richards; Simon Rice; Claudia Magwood; Bryan Collis; Steffen Martick; Saskia Schuppener; Gertraud Kremsner; Elizabeth Tilley; Jan Walmsley – British Journal of Learning Disabilities, 2024
Background: Inclusive research has sidelined discussion of theoretical issues with researchers with intellectual/learning disabilities. This is a situation which the Big Ideas initiative sought to change. Between 2021 and 2023, the Open University, Leipzig University and the University of Koblenz organised nine workshops to explore influential…
Descriptors: Electronic Learning, Workshops, Inclusion, Learning Disabilities