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Michele Capurso; Gaetano Catalano; Anna Calvaruso; Annalinda Monticelli; Calogero Taormina; Samanta Battiato; Francesca Paola Guadagna; Tania Piccione; Paolo D’Angelo; Delia Russo; Antonino Trizzino; Veronica Raspa – Continuity in Education, 2024
The quality of life for a child with a chronic illness depends on various factors, including the illness's severity, medical treatments, psychosocial and educational support, resource availability, and community involvement. These biopsychosocial factors become significant when the child receives care at home. This article presents and evaluates a…
Descriptors: Chronic Illness, Home Programs, Psychoeducational Methods, Family Programs
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Sarah A. Sobotka – Journal of Developmental and Physical Disabilities, 2025
Children with invasive mechanical ventilation (IMV)(ventilation delivered through an endotracheal tube), often require 24/7 monitoring and care by skilled caregivers in order to stay safely within the home environment. Practice standards recommend skilled in-home nursing to maintain safe monitoring practices. However, across the country, a lack of…
Descriptors: Child Health, Special Health Problems, Family Environment, Parent Role