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Direct linkRebecca J. Anderson-Kittow; Richard Keagan-Bull; Jo Giles; Irene Tuffrey-Wijne – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Increasing numbers of older adults with intellectual disabilities are living with ageing parents. These families need support to plan for the future to avoid crisis interventions following parental death. Method: Interviews and focus groups were conducted with people with intellectual disabilities (aged 40+) (N = 9), parents (N = 11)…
Descriptors: Family (Sociological Unit), Older Adults, Long Range Planning, Intellectual Disability
I. Belperio; R. Walker; C. Bigby; I. Wiesel; F. Rillotta; C. Hutchinson – Journal of Intellectual & Developmental Disability, 2024
Background: Future planning is a way of supporting people with intellectual disabilities and their families to think about their support needs as both groups age. Adults with intellectual disabilities, family members, and service providers are often involved in planning processes. However, it is unclear whose perspectives dominate in the…
Descriptors: Adults, Intellectual Disability, Cooperative Planning, Parent Attitudes
Nic McKenzie; Brigit Mirfin-Veitch; Henrietta Trip; Jennifer Conder – Journal of Intellectual & Developmental Disability, 2024
Background: People with intellectual disabilities have traditionally been excluded from Advance Care (AC) planning. This study aimed to improve access to and the quality of AC planning for this community. Method: A Participatory Action Research study was led, and participated in, by co-researchers with intellectual disabilities and disability…
Descriptors: Death, Intellectual Disability, Long Range Planning, Quality Assurance
