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Nic McKenzie; Brigit Mirfin-Veitch; Henrietta Trip; Jennifer Conder – Journal of Intellectual & Developmental Disability, 2024
Background: People with intellectual disabilities have traditionally been excluded from Advance Care (AC) planning. This study aimed to improve access to and the quality of AC planning for this community. Method: A Participatory Action Research study was led, and participated in, by co-researchers with intellectual disabilities and disability…
Descriptors: Death, Intellectual Disability, Long Range Planning, Quality Assurance