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Nicole T. Baumer; Margaret A. Hojlo; Angela M. Lombardo; Anna L. Milliken; Katherine G. Pawlowski; Sabrina Sargado; Cara Soccorso; Emily J. Davidson; William J. Barbaresi – Journal of Intellectual Disabilities, 2024
Down syndrome (DS) is a complex condition associated with multiple medical, developmental, and behavioral concerns. A prospective, longitudinal clinical database was integrated into a specialty Down Syndrome Program, with the goals of better understanding the incidence, course, and impact of co-occurring medical, neurodevelopmental, and mental…
Descriptors: Down Syndrome, Patients, Program Improvement, Databases