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'It Is a Complex Process, but It's Very Important to Return These Results to Participants'. Stakeholders' Perspectives on the Ethical Considerations for Returning Individual Pharmacogenomics Research Results to People Living with HIV
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Sylvia Nabukenya; David Kyaddondo; Adelline Twimukye; Ian Guyton Munabi; Catriona Waitt; Erisa S Mwaka – Research Ethics, 2024
This study aimed to explore stakeholders' perspectives on the ethical considerations for returning individual pharmacogenomics research results to people living with HIV. A qualitative approach to investigation involved five focus group discussions with 30 Community representatives, 12 key informant interviews with researchers, and 12 in-depth…
Descriptors: Foreign Countries, Acquired Immunodeficiency Syndrome (AIDS), Pharmacology, Genetics