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Nicole T. Baumer; Margaret A. Hojlo; Angela M. Lombardo; Anna L. Milliken; Katherine G. Pawlowski; Sabrina Sargado; Cara Soccorso; Emily J. Davidson; William J. Barbaresi – Journal of Intellectual Disabilities, 2024
Down syndrome (DS) is a complex condition associated with multiple medical, developmental, and behavioral concerns. A prospective, longitudinal clinical database was integrated into a specialty Down Syndrome Program, with the goals of better understanding the incidence, course, and impact of co-occurring medical, neurodevelopmental, and mental…
Descriptors: Down Syndrome, Patients, Program Improvement, Databases
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Mark Adley; Hayley Alderson; Katherine Jackson; William McGovern; Liam Spencer; Michelle Addison; Amy O'Donnell – International Journal of Social Research Methodology, 2024
This paper considers the ethical and practical issues of recruiting for, and administering a quantitative survey with marginalised populations. These issues were identified through a focus group discussion, which consolidated and expanded upon informal conversations held previously by five researchers about their experiences of conducting a…
Descriptors: Foreign Countries, Researchers, Research, Research Design
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Pratt-Williams, Jaunelle; Harris, Julie; Saucedo, Daniela; Mislevy, Jessica – Regional Educational Laboratory Appalachia, 2021
Regional Educational Laboratory Appalachia researchers developed the Cost-Feasibility Analysis (CFA) Toolkit to help education leaders estimate whether implementing supplemental online programs is affordable given a school or district's available resources. The CFA Toolkit guides users through a four-stage process that yields cost information that…
Descriptors: Cost Effectiveness, Feasibility Studies, Supplementary Education, Online Courses