Part C early intervention (EI) starts no earlier than birth, even with a prenatal diagnosis resulting in automatic eligibility. Despite other early U.S. home visiting programs beginning prenatally and the increasing likelihood of uncovering certain diagnoses prenatally, pregnant families cannot access EI. This study sought to understand families'…

To understand the ASD diagnosis and treatment pathways for US families, N = 38 Mexican-heritage mothers were interviewed about how and when they obtained an ASD diagnosis for their children. Most children (84%) were diagnosed between two and three years old. One-third of mothers reported receiving four to seven referrals before diagnosis. Mothers…

Research has found 96% of autistic individuals experience sensory processing difficulties, and being a parent presents many sensory demands that may be especially challenging for autistic mothers. Despite the high prevalence, no research exists exploring the sensory experiences of autistic mothers, highlighting the gap in current knowledge.…

Visual impairment affects an estimated 19 million children under 15 globally, with 12 million of them having vision issues that could be diagnosed and corrected, leaving 7 million children under 15 with significant visual impairments (WHO, 2021). The impact of receiving a visual impairment diagnosis can affect many aspects of a caregiver's life…

Background: Maternal input plays an important role in influencing linguistic development during the first years of life, and it is evident that mothers adapt their language according to their child's characteristics. Recently, it was demonstrated that maternal input addressed to children with sex chromosome trisomies (SCTs) at 8 months of age is…

Flashbulb memories are vivid and salient memories for the moment one hears about a surprising, emotional, and significant event. The current research examined flashbulb memories for a loved one's medical diagnosis, focusing on individual and situational factors associated with memory development and endurance over time. An online survey collected…

The birth of a child is the beginning of a woman's motherhood. It is genuinely illuminated in her raising and rearing responsibilities. This study explores the understanding and experiences of Mansaka mothers about autism before and after diagnosis. This qualitative phenomenological inquiry employed face-to-face semi-structured interviews with…

Mothers of adolescent girls diagnosed with an eating disorder often face the difficult task of deciding when and how to disclose their child's diagnosis to others. When doing so, they must consider their adolescent's right to privacy and the potential stigmatization associated with disclosure. Consequently, mothers may be hesitant to share their…

Autism spectrum disorder (ASD) is defined as a lifetime developmental disorder usually identified by social interaction impairment, communication deficits, and repetitive behavior. The cases of children detected with ASD are rising globally, including Malaysia. Parents, as the prime caregiver to these children, face numerous challenges due to what…

Since autism diagnosis is directly linked to the availability of supportive services, identifying best practices for early diagnosis of autism has long been a concern of professionals and families. Meanwhile, studies show persistent racial disparities in autism diagnosis. Although numerous clinical diagnostic guidelines have been published, there…

Mothers' views of their experiences with their child with high functioning autism (HFA) have not been thoroughly investigated in previous research. Thirty mothers of children with high functioning autism participated in a semi-structured interview in the present qualitative study. The collected data were generally coded into five broad categories:…

The aim of this study, which was carried out according to the life story/narrative research design, which is one of the qualitative research methods, is to examine the life story of a mother living with a child with an additional disability. In this context, a 5-year-old child with deficiencies such as hearing loss, autism and ADHD and his mother…

Background: A large body of evidence suggest that parents of young children with autism spectrum disorder or intellectual disability experience low levels of satisfaction with the diagnostic evaluation process. This study sought to document parents' satisfaction with the services of a pilot clinic implemented in Québec, Canada. Method: Two-hundred…

Perinatal depression/anxiety is a significant concern for mothers of children with Down syndrome. This is influenced by the way the Down syndrome diagnosis is shared with parents. This study examined social media posts from mothers regarding experiences of the birth of their child with Down syndrome. Forty-three total stories were coded using…

We document the characteristics of children and young adults identified in the Panel Study of Income Dynamics as having a learning disability and study whether legislative changes in diagnosis criteria have had a noticeable effect determining who receives a diagnosis. We further document that children and young adults identified as a having a…