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Sarah Potthoff; Fee Roth; Matthé Scholten – Research Ethics, 2024
This study explores how qualitative health researchers navigate the demands of medical research ethics committees in Germany where qualitative research is subject to approval only when it is conducted in medical contexts. We present the results of a grounded theory study to investigate qualitative health researchers' experiences with procedural…
Descriptors: Medical Research, Health, Qualitative Research, Ethics
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Aidan C. Tan; Angela C. Webster; Sol Libesman; Zijing Yang; Rani R. Chand; Weber Liu; Talia Palacios; Kylie E. Hunter; Anna Lene Seidler – Research Synthesis Methods, 2024
Background: Data sharing improves the value, synthesis, and integrity of research, but rates are low. Data sharing might be improved if data sharing policies were prominent and actionable at every stage of research. We aimed to systematically describe the epidemiology of data sharing policies across the health research lifecycle. Methods: This was…
Descriptors: Information Dissemination, Data, Health, Medical Research
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Soojin Park; Xu Qin; Chioun Lee – Sociological Methods & Research, 2024
In the field of disparities research, there has been growing interest in developing a counterfactual-based decomposition analysis to identify underlying mediating mechanisms that help reduce disparities in populations. Despite rapid development in the area, most prior studies have been limited to regression-based methods, undermining the…
Descriptors: Medical Research, Research Methodology, Social Differences, Human Body
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Groot, Barbara C.; Schrijver, Janine; Abma, Tineke A. – Educational Action Research, 2023
Participatory health research (PHR) and the use of arts-based methods continues to grow in popularity. Many scholars acknowledge the importance of (visual) ethics, especially in the dissemination of photographs in a digital age, but ethical issues that arise in relation to contact with the press and social media are not well documented. This…
Descriptors: Mass Media, Social Media, Ethics, Photography
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Julianne Cecile Barry; Tara Lise Erb; Krista Stelkia – Qualitative Research Journal, 2024
Purpose: The British Columbia Network Environment for Indigenous Health Research (BC NEIHR) aims to support and advance research leadership among Indigenous communities, collectives and organizations (ICCOs) within British Columbia, Canada. The BC NEIHR provides support and funding to ICCOs for research development and knowledge sharing. This…
Descriptors: Indigenous Populations, Organizations (Groups), Community, Collectivism
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Capone, George T. – American Journal on Intellectual and Developmental Disabilities, 2020
Translational research means different things to different people. In the biomedical research community, translational research is the process of applying knowledge from basic biology and clinical trials to techniques and tools that address critical medical needs such as new therapies. Translational research then is a "bench to bedside"…
Descriptors: Down Syndrome, Research, Genetic Disorders, Physiology
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Boon, Michele Hilton; Thomson, Hilary – Research Synthesis Methods, 2021
Effect direction (evidence to indicate improvement, deterioration, or no change in an outcome) can be used as a standardized metric which enables the synthesis of diverse effect measures in systematic reviews. The effect direction (ED) plot was developed to support the synthesis and visualization of effect direction data. Methods for the ED plot…
Descriptors: Visualization, Data Analysis, Measurement Techniques, Guidance
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Holmes, Matthew James Vaughton; Morris, Isla-Kate; Williams, Anthony; Le Blond, Jennifer; Cranna, Victoria; Davey, Gail – Research Ethics, 2019
A global health archive consisting of podoconiosis tissue slides and blocks (which was collected and imported into the UK before the introduction of the Human Tissue Act), was donated to Brighton & Sussex Medical School in 2014. There is little guidance on the socioethical and legal issues surrounding the retrospective use of archived or…
Descriptors: Archives, Health, Ethics, Human Body
Spybrook, Jessaca; Maynard, Rebecca; Anderson, Dustin – Grantee Submission, 2022
The practice of prospectively registering the details of intervention studies in a public database or registry is gaining momentum across disciplines as a strategy for increasing the transparency, credibility, and accessibility of study findings. In this article, we consider five registries that may be relevant for registration of intervention…
Descriptors: Prevention, Intervention, Databases, Credibility
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Pingitore, Alyssa; Mack, Ashley; Zhang, Justin; Devine, Eric G.; Doerr, Jackson; Denneen, Caroline – Research Ethics, 2022
Incidental findings in research with human participants may have implications for a person's present health or future health outcomes. Current guidelines focus on methods for handling and reporting incidental findings from biological test data but incidental findings might also arise from non-biological tests. This article presents three examples…
Descriptors: Ethics, Research Methodology, Data Analysis, Health
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Luhnen, Miriam; Prediger, Barbara; Neugebauer, Edmund A. M.; Mathes, Tim – Research Synthesis Methods, 2019
Introduction: The number of systematic reviews of health economic evaluations (SR-HEs) is increasing. We aimed at providing a detailed overview of the characteristics and applied methods in recently published SR-HEs. Methods: We searched MEDLINE (03/2017) for SR-HEs published since 2015 using validated search filters. We included studies that…
Descriptors: Economics, Databases, Medical Research, Search Strategies
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Naicker, Ramona – Education for Information, 2022
Racial bias in research impacts a study's relevancy, validity and reliability, though presently this aspect is not addressed in critical appraisal tools, and consequently appraisers may not take racial bias into account when assessing a paper's quality. Drawing on critical race theory (CRT) tenets that racism is ubiquitous and race a social…
Descriptors: Racism, Critical Race Theory, Disproportionate Representation, Minority Groups
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Frazier, Thomas W.; Dawson, Geraldine; Murray, Donna; Shih, Andy; Sachs, Jessica Snyder; Geiger, Angela – Journal of Autism and Developmental Disorders, 2018
Inclusion of stakeholder voices in the allocation of research funding can increase the relevance of results and improve community engagement in research. We describe the results of an online survey that gathered input from community stakeholders regarding autism research priorities. A demographically diverse sample of respondents (N = 6004; 79.1%…
Descriptors: Autism, Medical Research, Research Needs, Financial Support