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Shared Decision Making with Frail People with Intellectual Disabilities in the Palliative Phase: A Process Evaluation of the Use of the In-Dialogue Conversation Aid in Practice
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Noorlandt, H. W.; Korfage, I. J.; Felet, F. M. A. J.; Aarts, K.; Festen, D. A. M.; Vrijmoeth, C.; Van Der Heide, A.; Echteld, M. A. – Journal of Applied Research in Intellectual Disabilities, 2024
Background: This study reports the process evaluation of the In-Dialogue conversation aid to facilitate shared decision-making with people with intellectual disabilities in the palliative phase. Methods: Training for In-Dialogue was evaluated by 53 support staff members through questionnaires. The use of In-Dialogue in four residential care…
Descriptors: Intellectual Disability, Participative Decision Making, Residential Institutions, Residential Care
Disclosure and Plan of Care at End of Life: Perspectives of People with Intellectual Disabilities and Families in Ireland
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Cithambaram, Kumaresan; Duffy, Mel; Courtney, Eileen – British Journal of Learning Disabilities, 2020
Background: Recently, more and more people with intellectual disabilities have been dying from life-limiting conditions, and on many occasions, people with intellectual disabilities have not been informed of this. There is limited evidence concerning the views and opinions of this cohort regarding the information that is needed in order for…
Descriptors: Disclosure, Foreign Countries, Intellectual Disability, Death
Caring for a Child with a Life Limiting Condition: The Experiences of Nurses in an Intellectual Disability Service Provider
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Connor, Eilis O.; Corcoran, Yvonne – Journal of Intellectual Disabilities, 2022
This study elicited the experiences of nurses caring for children with life-limiting conditions and their family, within a community based intellectual disability service. A qualitative descriptive research approach was adopted where purposeful sampling recruited 10 participants. Data was collected using one to one semi-structured interviews and…
Descriptors: Nurses, Children, Intellectual Disability, At Risk Persons
Missed Opportunities: LGBTQ Youth Homelessness in America
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Morton, M. H.; Samuels, G. M.; Dworsky, A.; Patel, S. – Chapin Hall at the University of Chicago, 2018
"Missed Opportunities: LGBTQ Youth Homelessness in America" highlights research related to the specific experiences of young people who identify as lesbian, gay, bisexual, transgender, and queer (LGBTQ) and face homelessness. We learned that, compared to heterosexual and nontransgender youth, LGBTQ youth are disproportionately…
Descriptors: Homeless People, Youth, LGBTQ People, Disproportionate Representation