Background: This article aims to understand moral distress in carers of people with an intellectual disability during the COVID-19 pandemic. Method: Nine staff carers of seven people with an intellectual disability, who had been participants of the IDS-TILDA study in Ireland, who died during the COVID-19 pandemic participated in in-depth,…

This study explores how daycare staff perceive children's reactions to the illness and loss of a parent, the support needs of bereaved children, and the staff's role as supporters. Data were generated through conducting focus groups with 23 employees from eight Danish daycare institutions. The study finds that staff focus on assisting children to…

Background: People with intellectual disabilities are thought to have a reduced capacity for understanding death. Drawing on cognitive theory, researchers have suggested that those with profound intellectual and multiple disabilities mainly perceive loss as a mismatch between past and present experiences. However, very little research has…

The purpose of this study is twofold: to assess the acceptance and usefulness of Nagoya University Small Private Online Courses, which is an online end-of-life care educational program through popular social media designed to supplement traditional end-of-life care education among healthcare professionals and to get constructive feedback with the…

Background: There is broad consensus within the disability field that the end-of-life care offered to people with intellectual disabilities should be of a quality consistent with that advocated by contemporary palliative care. In practice, however, various barriers are encountered when applying palliative care strategies to the end-of-life care of…