Americans diagnosed with serious illnesses tend to have significantly poorer quality of life due to limited access to reliable palliative and end-of-life care. Individuals living with these conditions continue to experience health care that does not meet their needs, experience undue suffering, require increased care visits, and have limited or…

This study elicited the experiences of nurses caring for children with life-limiting conditions and their family, within a community based intellectual disability service. A qualitative descriptive research approach was adopted where purposeful sampling recruited 10 participants. Data was collected using one to one semi-structured interviews and…

The client's ability to communicate is key to providing quality palliative end-of-life care. A speech-language pathologist (SLP) can facilitate the patient's ability to communicate concerns or preferences in order to (1) improve the health care team's ability to manage symptoms and engage in end-of-life discussions, and (2) support the patient and…