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Ghanouni, Parisa; Seaker, Liam – Journal of Autism and Developmental Disorders, 2022
Although previous research has shown that the transition to adulthood may be challenging, there exists a lack of research regarding perspectives of stakeholders on the transition of individuals with Autism Spectrum Disorder (ASD). This study aimed to investigate stakeholders' experiences regarding healthcare services for youth with ASD during…
Descriptors: Autism, Pervasive Developmental Disorders, Adolescents, Young Adults
den Houting, Jacquiline; Higgins, Julianne; Isaacs, Kathy; Mahony, Joanne; Pellicano, Elizabeth – Autism: The International Journal of Research and Practice, 2021
Despite calls for increased community engagement in autism research, the published evidence base suggests that participatory autism research remains rare. This study examined the extent and nature of community engagement in Australian research projects commissioned by the Autism CRC. Data were gathered using an online survey, comprising…
Descriptors: Participatory Research, Autism, Pervasive Developmental Disorders, Foreign Countries
Roche, Laura; Adams, Dawn; Clark, Megan – Autism: The International Journal of Research and Practice, 2021
In recent years, a shift in focus has seen researchers seek to identify the priorities and preferences of key stakeholders to shape the direction of future research for those on the autism spectrum. The process of synthesising the views, knowledge and expertise of key stakeholders with either a lived or shared experience of autism is invaluable…
Descriptors: Autism, Pervasive Developmental Disorders, Research Needs, Stakeholders
Emily Gomez; Amy Drahota; Aubyn C. Stahmer – Grantee Submission, 2021
Community-academic partnerships are believed to increase the effectiveness and feasibility of action research. While factors facilitating and hindering community-academic partnerships have been identified, their influence on the collaborative process is unknown, especially during community-academic partnership initiation and development. This…
Descriptors: Partnerships in Education, Community Involvement, Autism, Pervasive Developmental Disorders
Bruck, Susan; Webster, Amanda A.; Clark, Trevor – Journal of Research in Special Educational Needs, 2022
Students on the autism spectrum often require support to navigate transitions from one educational setting to another. This study examined stakeholder perceptions about the transition supports that educators employ to support students on the autism spectrum to transition from one school setting to another. A non-matched Australia-wide sample of…
Descriptors: Transitional Programs, Students with Disabilities, Autism, Pervasive Developmental Disorders
Beck, Kelly B.; Northrup, Jessie B.; Breitenfeldt, Kaitlyn E.; Porton, Shannon; Day, Taylor N.; MacKenzie, Kristen T.; Conner, Caitlin M.; Mazefsky, Carla A. – Autism: The International Journal of Research and Practice, 2022
Emotion dysregulation (ED) underlies psychiatric symptoms and impedes adaptive responses in autistic individuals. The Emotion Awareness and Skills Enhancement (EASE) program was the first mindfulness-based intervention designed to target emotion dysregulation in autistic adolescents (12-17 years old). This project partnered with stakeholders to…
Descriptors: Stakeholders, Program Development, Emotional Response, Autism
Curtiss, Sarah L.; Lee, Gloria K.; Chun, Jina; Lee, Heekyung; Kuo, Hung Jen; Ami-Narh, Danielle – Career Development and Transition for Exceptional Individuals, 2021
Parental expectations are important for autistic youth during the transition to adulthood, but less is known about the expectations of other stakeholder groups. The current study examines the similarities and differences in expectations among autistic youth, parents, and professionals. Data were collected through six focus groups with 24…
Descriptors: Autism, Pervasive Developmental Disorders, Parents, Professional Personnel
Bejnö, Hampus; Bölte, Sven; Linder, Nina; Långh, Ulrika; Odom, Samuel L.; Roll-Pettersson, Lise – Journal of Autism and Developmental Disorders, 2022
In Sweden, young autistic children typically attend community-based preschool programs, which may not be adapted to their needs. In the current study, stakeholders to autistic children receiving Early Intensive Behavioral Intervention were interviewed following a quasi-randomized study (#NCT03634761) aimed at improving the preschool program…
Descriptors: Foreign Countries, Autism, Pervasive Developmental Disorders, Preschool Education
Benevides, Teal W.; Shore, Stephen M.; Palmer, Kate; Duncan, Patricia; Plank, Alex; Andresen, May-Lynn; Caplan, Reid; Cook, Barb; Gassner, Dena; Hector, Becca Lory; Morgan, Lisa; Nebeker, Lindsey; Purkis, Yenn; Rankowski, Brigid; Wittig, Karl; Coughlin, Steven S. – Autism: The International Journal of Research and Practice, 2020
Autistic adults are significantly more likely to experience co-occurring mental health conditions such as depression and anxiety. Although intervention studies are beginning to be implemented with autistic adults to address mental health outcomes, little is known about what research autistic adults feel is needed, or what mental health outcomes…
Descriptors: Autism, Adults, Pervasive Developmental Disorders, Mental Disorders
Habayeb, Serene; Al-Harahsheh, Sanaa; Ratto, Allison; Verbalis, Alyssa; Pugliese, Cara; Nadwodny, Nicole; Al-Meer, Feras; El-Akoum, Maha – Autism: The International Journal of Research and Practice, 2022
Autism services in Qatar are expanding rapidly, but focus predominantly on young children. The shortage of qualified autism providers and minimal opportunities for autistic youth to participate in school, work, and community have led to a growing population of autistic youth transitioning to adulthood with substantial unmet needs for behavioral…
Descriptors: Foreign Countries, Autism, Pervasive Developmental Disorders, Respite Care
Frazier, Thomas W.; Dawson, Geraldine; Murray, Donna; Shih, Andy; Sachs, Jessica Snyder; Geiger, Angela – Journal of Autism and Developmental Disorders, 2018
Inclusion of stakeholder voices in the allocation of research funding can increase the relevance of results and improve community engagement in research. We describe the results of an online survey that gathered input from community stakeholders regarding autism research priorities. A demographically diverse sample of respondents (N = 6004; 79.1%…
Descriptors: Autism, Medical Research, Research Needs, Financial Support
Wright, Cheryl A.; Diener, Marissa L. – Journal of Higher Education Outreach and Engagement, 2020
The purpose of this article is to advance the importance and value of participant-oriented research (POR) at research universities. We highlight a case study of community collaboration as it relates to a strengths-based educational model for students with autism. This evidence-based program's success centers on the inclusion of students, parents,…
Descriptors: Participatory Research, Research Universities, Students with Disabilities, Autism
Terlouw, G.; van't Veer, J. T. B.; Kuipers, D. A.; Metselaar, J. – Early Child Development and Care, 2020
Children with autism spectrum disorders (ASD) often face challenges in social situations. Although designers and researchers explore the potential of digital (game-like) interventions, most interventions lack evidence in efficacy or proper design. The aim of this study is to explore the worldview and needs of the target users in their daily life…
Descriptors: Autism, Pervasive Developmental Disorders, Children, Interpersonal Competence
Su, Xueyun; Guo, Jiajun; Wang, Xiaohui – International Journal of Inclusive Education, 2020
A main purpose of the present study was to examine and compare attitudes toward inclusive education between parents of children with ASD, parents of typically developing children, and classroom teachers in China. The investigators also sought to explore factors influencing different stakeholders' perspectives. An attitude survey was distributed to…
Descriptors: Foreign Countries, Stakeholders, Inclusion, Parent Attitudes
Ghanouni, Parisa; Jarus, Tal; Zwicker, Jill G.; Lucyshyn, Joseph – Journal of Special Education Technology, 2020
Despite the rapid growth in development of technology, such as software or hardware devices, its implementation among stakeholders working with individuals with autism spectrum disorder (ASD) is slow. This suggests that there might be a number of challenges that hinder technology adoption or its continued usage. The current project aimed to…
Descriptors: Autism, Pervasive Developmental Disorders, Barriers, Technology Integration