Background: People with intellectual disabilities are rarely involved in end-of-life decisions. This study investigated and further developed approaches and resources to enable inclusive end-of-life care planning. Methods: A multi-centre, multi-method four-phase study, involving 195 researchers, participants, advisors and co-design members,…

Due to advances in medical treatments, students with terminal illnesses are more likely to attend public schools, increasing the possibility that they may die on school property. However, educational health plans often fail to consider end-of-life care decisions. In the absence of federal or state statutes, school boards are left to navigate the…

Many counselors believe suicidal ideation in a terminally ill client can be rational (Rogers et al, 2001). One hundred and fifty-three counselors rated their perceived competence to counsel individuals who are rationally suicidal. Data were analyzed with non-parametric statistics. Findings suggest participants with more education, more years of…

This viewpoint describes the case of a 4-year-old boy's journey in art therapy after his cancer had returned, which despite surgery, radiation, and chemotherapy, ultimately claimed his life. The patient and his family participated in art therapy over the course of 18 months. As an integrated, palliative component of treatment, art therapy helped…

Background: Illness and death are part of life for everyone, including people with intellectual disabilities. This study investigated the extent to which staff communicate about death with people with intellectual disability facing terminal illness or bereavement. Method: Staff who support people with intellectual disability in the UK (n = 690)…

This study elicited the experiences of nurses caring for children with life-limiting conditions and their family, within a community based intellectual disability service. A qualitative descriptive research approach was adopted where purposeful sampling recruited 10 participants. Data was collected using one to one semi-structured interviews and…

Speech-language pathologists often lack preparation for palliative care practice and this lack of training can lead to poor outcomes for patients. Lack of training can additionally lead to burnout and compassion fatigue in clinicians. Careful implementation of training is necessary to increase the knowledge base for palliative practice and careful…

The client's ability to communicate is key to providing quality palliative end-of-life care. A speech-language pathologist (SLP) can facilitate the patient's ability to communicate concerns or preferences in order to (1) improve the health care team's ability to manage symptoms and engage in end-of-life discussions, and (2) support the patient and…

An examination of the employment market in Tanzania highlights profound differences in the competencies and skills of individuals who have graduated from the local schools from those who have graduated from international schools. Although Tanzania had achieved nearly universal access to primary education by 2007, enrollment of primary school-age…

In response to needs identified by the Institute of Medicine and the National Association of Social Workers, this article describes an experiential assignment to increase BSW students' skills in end-of-life care. In this assignment, students discussed end-of-life wishes with another, completed an advance directive, and processed their experience.…

Background: This article provides a literature review exploring reasons for disclosure and nondisclosure of bad news to people with learning disabilities. Connections are made to current policy, law and ethics to highlight the complexity of this issue. Methods: This review examines literature on disclosing bad news to people with learning…

Purpose: The response of each child to terminal illness treatment is highly individual. This will certainly affect the level and type of perceived needs. This study is conducted to examine the needs of children with terminal illness from the perspective of nurses and parents. Method: A qualitative descriptive study was conducted in this research.…

Introduction: Malawi is one of the world's poorest countries with very limited healthcare spending and a lack of post-graduate training for healthcare workers, including in critical illness management. Critical illness simulation courses have been shown to be an effective training tool and form a key part of training for healthcare professionals…

This article contributes to a growing literature that takes a more nuanced approach to exploring the complexities of relationships and negotiations with gatekeepers. Using our study of young people living with a parent at the end of life as a 'critical case' of sensitive qualitative research, we discuss how far from being a smooth, linear process,…

Background: Speech pathologists have a pivotal role in palliative care, assisting patients with swallowing and communication disorders, yet very little is known about the preparedness of speech pathologists to work in this field. Aims: To investigate the preparedness of speech pathologists for working in palliative care. The term 'palliative care'…