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Approaches to and Outcomes of Future Planning for Family Carers of Adults with an Intellectual Disability: A Systematic Review
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Brennan, Damien; McCausland, Darren; O'Donovan, Mary Ann; Eustace-Cook, Jessica; McCallion, Philip; McCarron, Mary – Journal of Applied Research in Intellectual Disabilities, 2020
Background: People with intellectual disabilities are living longer, with family homes and family caregivers increasingly identified as a key support to this ageing population of people with intellectual disabilities. Method: This systematic review sets out existing evidence from empirically evaluated intervention studies of future care planning…
Descriptors: Long Range Planning, Caregivers, Family Role, Adults
Balancing Personal Wishes and Caring Capacity in Future Planning for Adults with an Intellectual Disability Living with Family Carers
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McCausland, Darren; Brennan, Damien; McCallion, Philip; McCarron, Mary – Journal of Intellectual Disabilities, 2019
Most people with intellectual disabilities (IDs) live at home with family, and most carers and care recipients wish to continue this arrangement. However, despite worry about what will happen when carers are unable to continue caring, most families do not plan for the future. The "Future Care Road Map" (FCRM) pilot study sought to…
Descriptors: Caring, Adults, Intellectual Disability, Caregivers
"What's Going to Happen When We're Gone?" Family Caregiving Capacity for Older People with an Intellectual Disability in Ireland
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Brennan, Damien; Murphy, Rebecca; McCallion, Philip; McCarron, Mary – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Changing family sociodemographic factors, increased life expectancy for people with an intellectual disability, deinstitutionalization and policy prioritization of the family as the principal care provider, presents new challenges to care sustainability. Method: A qualitative study design was employed, entailing focus groups and…
Descriptors: Foreign Countries, Intellectual Disability, Caregivers, Older Adults