Sixty-nine children (20 with cerebral palsy (CP)) and their mothers participated in a joint writing activity. Children (M age = 64.56 months; SD = 7.07 months) wrote a four-item grocery list on a keyboard at home with their mothers. Mothers who had children with CP generally provided a lower level of graphophonemic (i.e., segmenting words into…

The paper aims to explore ways in which mothers of children with cerebral palsy (CP) attempt to voice their concerns about current discourses and power imbalances enshrined in special education policy and provision. Mothers' narratives are important in making transparent the multiple forms of 'disablism' experienced by them in their attempts to…

The aim of this article was to explore the views of parents regarding seating for children with cerebral palsy. Two interviews with parents were conducted. These were transcribed verbatim and thematic analysis was conducted. This small study outlines three themes: the importance of seating, seating and participation, and the parental role in…

Twenty kindergartners (eight boys) with cerebral palsy (CP) and their mothers engaged in a writing activity that required dyads to compose a grocery list containing four items together. Maternal writing supports were observed, including graphophonemic mediation (i.e., support for letter--sound correspondence) and printing mediation (i.e., guidance…

In this study, we investigated whether (1) children with cerebral palsy (CP) using night orthoses experience more sleep disturbance than those not using night orthoses, (2) parental personality is related to the experienced parental burden of night orthoses, and (3) parental sense of competence in the parenting role mediates the relation between…

Nick is the author's first-born child. He was born healthy in 1993. Within days, however, there would be medical complications resulting in brain damage, seizures, medical issues, a diagnosis of cerebral palsy at four months of age, and later, a diagnosis of bi-lateral progressive hearing loss at eight years of age. Nick's parents have been told…

This article shares a story of a family with a child who has a spastic quadriplegia cerebral palsy, a form of cerebral palsy (CP) that affects all four limbs and torso with debilitating muscle dysfunction. It describes how the family cares for their child's incontinence. It also shares the experience of the child's mother, Kathy, who attributes…

The paper examines the language used to describe pain and surgery in the trials and the media discussions of the killing of Tracy Latimer by her father. Descriptions of proposed surgical procedures, that were planned before Tracy was killed, exaggerate the intrusiveness of surgeries to be performed so as to suggest that surgery would be worse than…

Gastroesophageal reflux is a common medical problem affecting about 5% of otherwise healthy children. It is extremely common among children with special needs and affects more than half of children with cerebral palsy, Down syndrome, premature birth, and several other common conditions. The disease is becoming more widely recognized, but children…

Communication can be difficult for children with conditions such as cerebral palsy because of speech and physical impairments. For this group of children, choice-making is often limited to choices of personal preferences; however, preferences do not reveal intellectual abilities. Therefore, choice-making should be presented to these children in…