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Direct linkDavies, Hugh; Munday, Rosie; O'Reilly, Maeve; Hamilton, Catriona Gilmour; Ardahan, Arzhang; Kolstoe, Simon E.; Gillies, Katie – Research Ethics, 2023
Research consent processes must provide potential participants with the necessary information to help them decide if they wish to join a study. On the Oxford 'A' Research Ethics Committee we've found that current research proposals mostly provide adequate detail (even if not in an easily comprehensible format), but often fail to support decision…
Descriptors: Research, Informed Consent, Participation, Decision Making
Download full textCostello, Eamon; Brunton, James; Bolger, Richard; Soverino, Tiziana; Juillerac, Clément – Online Learning, 2023
Ethical reviews of research plans function as a cornerstone of good research practice in order that no harm should come to participants. Ethical concerns have taken on a new salience in a digital world where data can be generated at scale. Big data research has grown rapidly, raising increased ethical concerns. Several intersecting areas of big…
Descriptors: MOOCs, Informed Consent, Educational Research, Ethics
Jennifer Jackson – International Journal of Social Research Methodology, 2023
While digital tools are often recommended for researchers, there is a lack of evidence around effective social media strategies among researchers to optimise participant recruitment and data collection. However, an 'add Facebook and stir' approach could create extra burden for participants or foil researchers' efforts. Participant recruitment…
Descriptors: Social Media, Researchers, Recruitment, Data Collection
Abrera, Anna Marie C.; Pagkatipunan, Paulo Maria N.; Limson, Elisa Bernadette E. – Journal of Academic Ethics, 2023
The establishment of a Research Ethics Committee (REC) is a significant step to ensure the standard procedures in ethics review process that protect human participants. However, in instances when RECs are not yet established, surrogate activities are practiced by some institutions. The objective of this study was to identify prevailing research…
Descriptors: Research Committees, Ethics, Educational Research, Educational Researchers
Winnie Lay; Loretta Gasparini; William Siero; Elizabeth K. Hughes – Research Ethics, 2025
Dynamic consent is increasingly recommended for longitudinal and biobanking research; however, the value of investing in such systems is unclear. We undertook a rapid review of the benefits and challenges of implementing dynamic consent by searching five databases (Ovid Medline, Ovid Embase, Scopus, Web of Science, Cumulative Index to Nursing and…
Descriptors: Databases, Research Reports, Researchers, Research Methodology
Consent through Art: A Critique of a Visual Method Developed with Peer-Researchers in Southern Nepal
Joanna Morrison; Awantika Priyadarshani; Abriti Arjyal – International Journal of Social Research Methodology, 2024
Obtaining informed consent can be challenging during peer research when the boundaries between researcher and participant are blurred. We developed a novel visual consent method with illiterate artists in Nepal who conducted peer interviews in their communities. Artists discussed and sketched images related to ethical principles to create a visual…
Descriptors: Foreign Countries, Researchers, Action Research, Participatory Research
Westcott, Jordan B.; Epstein, Dryden; Wiley, Benjamin; Westcott, Jess M.; Welfare, Laura E.; Catalano, Chase – Counselor Education and Supervision, 2023
Sexual orientation is often invisible in counseling research despite increasing LGBQ+ identity in the United States. We used consensual qualitative research to explore considerations from LGBQ+ counseling researchers for collecting sexual orientation. Three domains emerged: risks, benefits, and methodological considerations. Our findings highlight…
Descriptors: Counseling, Counselor Training, Sexual Orientation, Research
Borgström, Åsa – Journal of Intellectual Disabilities, 2023
Conducting qualitative research on young people with intellectual disability and the Internet poses methodological challenges as well as opportunities. Based on memos from a qualitative study, this article focuses on identified gaps related to the challenges of informed consent, access to Internet arenas and using stimulus materials.…
Descriptors: Intellectual Disability, Informed Consent, Internet, Researchers
Newcombe, Nicolina – Waikato Journal of Education, 2022
Obtaining ethical approval for my PhD research with adults with learning (intellectual) disabilities presented an unexpected challenge of learning to work with two sets of guidance: the United Nations Convention on the Rights of Persons with Disabilities (CRPD), and the Ethical Conduct in Human Research and Related Activities Regulations (HRR).…
Descriptors: Ethics, Adults, Intellectual Disability, Civil Rights
Gjermestad, Anita; Skarsaune, Synne N.; Bartlett, Ruth L. – Journal of Intellectual Disabilities, 2023
People with profound and multiple learning disabilities are often excluded from the processes of knowledge production and face barriers to inclusion in research due to cognitive and communicative challenges. Inclusive research--even when intending to be inclusive--tends to operate within criteria that exclude people with profound and multiple…
Descriptors: Severe Intellectual Disability, Inclusion, Research, Interpersonal Communication
Dalton-Brown, Sally – Research Ethics, 2022
Learning about research ethics and research integrity is greatly facilitated by case studies, which illuminate, ground and personalise abstract questions. This paper argues that fiction can provide similar learning experiences, incarnating ethical dilemmas through a medium that is highly accessible yet sophisticated in its depictions of how…
Descriptors: Ethics, Research, Fiction, Animals
Matic, Igor; De Nardi, Gianni; Steiner, Felix – AILA Review, 2021
Medical researchers are ethically and legally required to inform participants and get written permission before enrolling them into a human research project ("Informed Consent"). Accordingly, information and consent represent a complex procedure, and the participant concerned "must receive comprehensible oral and written…
Descriptors: Informed Consent, Ethics, Medical Research, Researchers
Mary Bottomley; Jodie Bradley; Lisa Clark; Bryan Collis; Bojana Daw Srdanovic; Victoria Farnsworth; Annie Ferguson; Dan Goodley; Andrew Fox; Nikita K. Hayden; Charlotte Lawthom; Rebecca Lawthom; Claudia Magwood; Robert McLean; Ian Middleton; Alison Owen; Matty Prothero; Simon Rice; Simon Richards; Katherine Runswick-Cole; Kelly Scargill; Rohit Shankar; Toni Ann Wood – British Journal of Learning Disabilities, 2024
Background: We are a research team of clinical, academic and advocacy-based researchers with and without learning disabilities, working on the "Humanising Healthcare" (for people with learning disabilities) project. The project is dedicated to finding and sharing healthcare practices that enhance the lives of people with learning…
Descriptors: Ethics, Learning Disabilities, Guidelines, Researchers
Traianou, Anna; Hammersley, Martyn – International Journal of Social Research Methodology, 2021
It is widely assumed that researchers must normally secure informed consent from participants if research is to be ethical. But what exactly are people being asked to consent to? Most obviously, it is to supplying, or providing access to, data; but are they also agreeing that this data can be used in any way relevant to the research, or do they…
Descriptors: Research, Informed Consent, Civil Rights, Personal Autonomy
Carly Seedall; Lisa Tambornino – Research Ethics, 2024
This scoping review maps research ethics and integrity challenges and best practices encountered by research actors in the DACH countries (Germany, Austria, and Switzerland), including researchers, funders, publishers, research ethics committees, and policymakers, during the COVID-19 pandemic. The COVID-19 pandemic brought research and, in turn,…
Descriptors: Research, Ethics, Integrity, Barriers
