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Connor, Eilis O.; Corcoran, Yvonne – Journal of Intellectual Disabilities, 2022
This study elicited the experiences of nurses caring for children with life-limiting conditions and their family, within a community based intellectual disability service. A qualitative descriptive research approach was adopted where purposeful sampling recruited 10 participants. Data was collected using one to one semi-structured interviews and…
Descriptors: Nurses, Children, Intellectual Disability, At Risk Persons
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Hopp, Faith Pratt; Thornton, Nancy; Martin, Lindsey – Health & Social Work, 2010
The growing number of older adults with heart failure (HF) suggests the need for more information about how people with this condition experience their illness and strategies for coping with this condition. To address this need, the authors conducted a systematic review of the literature and an in-depth, thematic analysis of qualitative…
Descriptors: Older Adults, Heart Disorders, Coping, Experience
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Georges, Jean-Jacques; Onwuteaka-Philipsen, Bregje D.; Muller, Martien T.; van der Wal, Gerrit; van der Heide, Agnes; van der Maas, Paul J. – Death Studies, 2007
This study used retrospective interviews with 87 relatives to describe the experiences of patients who died by euthanasia or physician-assisted suicide (EAS) in the Netherlands. Most of the patients suffered from cancer (85%). The relatives were most often a partner (63%) or a child (28%) of the patient. Before explicitly requesting EAS most…
Descriptors: Patients, Terminal Illness, Experience, Suicide
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Black, Kathy – Death Studies, 2007
The study surveyed 135 health care professionals (74 nurses, 32 physicians, and 29 social workers) to examine their personal death attitudes and experiences in relation to their reported advance directive communication practice behavior. Negative correlations were found between collaborating with other health care professionals regarding the…
Descriptors: Physicians, Terminal Illness, Social Work, Health Services
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Carr, Deborah; Khodyakov, Dmitry – Journal of Health and Social Behavior, 2007
Dying persons are encouraged to name as durable power of attorney for health care (DPAHC) someone who will thus be empowered to make end-of-life treatment decisions for them in the event that they become incapacitated. We use data from the Wisconsin Longitudinal Study to investigate whether and whom older adults designate as their DPAHC. DPAHC…
Descriptors: Terminal Illness, Decision Making, Empowerment, Death