Due to advances in medical treatments, students with terminal illnesses are more likely to attend public schools, increasing the possibility that they may die on school property. However, educational health plans often fail to consider end-of-life care decisions. In the absence of federal or state statutes, school boards are left to navigate the…

This viewpoint describes the case of a 4-year-old boy's journey in art therapy after his cancer had returned, which despite surgery, radiation, and chemotherapy, ultimately claimed his life. The patient and his family participated in art therapy over the course of 18 months. As an integrated, palliative component of treatment, art therapy helped…

This study elicited the experiences of nurses caring for children with life-limiting conditions and their family, within a community based intellectual disability service. A qualitative descriptive research approach was adopted where purposeful sampling recruited 10 participants. Data was collected using one to one semi-structured interviews and…

Purpose: The response of each child to terminal illness treatment is highly individual. This will certainly affect the level and type of perceived needs. This study is conducted to examine the needs of children with terminal illness from the perspective of nurses and parents. Method: A qualitative descriptive study was conducted in this research.…

This article contributes to a growing literature that takes a more nuanced approach to exploring the complexities of relationships and negotiations with gatekeepers. Using our study of young people living with a parent at the end of life as a 'critical case' of sensitive qualitative research, we discuss how far from being a smooth, linear process,…

Drama is a promising means of delivering educational messages in palliative care. Research studies have found drama to be an effective means of delivering educational messages in other domains of learning, such as teaching health education to children and adults and engaging the general public in health policy development. This paper discusses the…

Functional Measurement (FM) has been applied to a variety of settings that can be considered as "extreme" settings; that is, settings involving participants with severe cognitive disabilities or involving unusual stimulus material. FM has, as instance, been successfully applied for analyzing (a) numerosity judgments among children as…

Few resources seem to be available to support school communities that have a child whose death is anticipated. The present article draws on the experiences of school staff and special education employees who have been involved in New Zealand school communities where a child was terminally ill and died. These experiences could help other school…