Background: Across the life course, women and girls with learning disabilities and their carers report difficulties in accessing information and support with menstruation, yet their experiences are often overlooked in initiatives to improve menstrual health and wellbeing. Our aim was to collaborate with women with learning disabilities to…

Children develop expectations of caregivers' support-giving during early-life interactions. The present study examined whether caregivers' responsiveness would influence young children's expectations of caregivers' support-giving behavior and willingness under different situational stress levels. We manipulated the caregivers' responsiveness and…

The purpose of this study was to address the research question "To what extent does perceived usefulness (PU) predict the willingness to adopt augmentative and alternative communication (AAC) technology among caregivers of children with Down syndrome (DS)?" as well as "To what extent does perceived ease of use (PEU) predict the…

Drawing upon principles of participatory action research, this study collected input from secondary school stakeholders (teachers, students, caregivers, alumni, staff, and administrators) to create a local definition of quality teaching for students at an urban charter school in the northeastern United States. Analysis of stakeholder input…

Effective practices for supporting families with autistic children ensure a match between their needs and the expectations and competencies of the clinician. Applied behavior analysis (ABA) services are a common provision for serving autistic individuals. However, in regions where ABA is in its infancy, like the Czech Republic and North Macedonia,…

The present study examines provider and caregiver satisfaction with telehealth evaluation of autism spectrum disorder (ASD) in young children during the coronavirus SARS-CoV-2 (COVID-19) pandemic. A telehealth model of ASD evaluation was implemented with 308 children ages 14 to 78 months between May 2020 to June 2021. Data were gathered from…

Although participation in the digital world is an important means for taking part in our society, people with intellectual disabilities are still largely excluded from the manifold possibilities of digital participation. In our study, we investigate attitudes of both formal caregivers and people with intellectual disabilities in Germany regarding…

There is an increased belief in the benefits of information and communication technologies (ICT) in healthcare, but the perceived benefits of ICT in family caregiver support need to be explored. This qualitative interview study aimed to describe how family caregivers and healthcare staff in COPD care experience ICT. The results showed that both…

Background: People with Down syndrome (PDS) have complex healthcare needs. Little is known about the quality of health care for PDS, let alone how it is appraised by PDS and their caregivers. This study explores the perspectives of PDS, their parents and support staff regarding quality in health care for PDS. Method: The present authors conducted…

Background: Research has shown that there is variability in quality of life (QOL) outcomes for people with intellectual disabilities who live in group homes. The aim was to examine dimensions of group home culture as predictors of QOL outcomes. Method: The Group Home Culture Scale (GHCS) was used to measure staff perceptions of culture in 23 group…

Using a mobile health application (i.e., app) to empower primary caregivers of young children with developmental disorders in low- and middle-income countries is opening up new avenues for early childhood intervention. Thirteen caregivers and 10 speech-language pathologists participated in 3 focus groups to explore their perspectives about the…

Transgender youth face several comorbidities with oral health implications, including depression, harmful eating behaviors, and pharmaceutical side-effects. No information exists on how transgender youth view oral health or how they interface with oral health providers. The purpose of this study was to elicit experiences, knowledge, and…

Introduction: This research investigated the views of different stakeholders regarding the specialist mental health service for people with intellectual disabilities (ID) in Singapore. Method Interviews were conducted with mental health professionals, family carers and service users with ID. Framework analysis was adopted to identify common…

Background: The quality of life (QOL) perceptions reported by adults with intellectual disability (ID) might not reflect their QOL as assessed by support staff or family members. The main purpose of this research was to examine the consistency and agreement between self-report and report-of-others ratings and to analyse if there are predictors for…

Background: Restrictive measures may have important physical and psychological consequences on all persons involved. The current study examined how these are perceived by persons with intellectual disabilities and staff. Materials and Methods: Interviews were conducted with eight persons with intellectual disabilities who experienced a restrictive…