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Real-World Experiences in Autistic Adult Diagnostic Services and Post-Diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study
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Scattoni, Maria Luisa; Micai, Martina; Ciaramella, Antonio; Salvitti, Tommaso; Fulceri, Francesca; Fatta, Laura Maria; Poustka, Luise; Diehm, Robert; Iskrov, Georgi; Stefanov, Rumen; Guillon, Quentin; Rogé, Bernadette; Staines, Anthony; Sweeney, Mary Rose; Boilson, Andrew Martin; Leósdóttir, Thora; Saemundsen, Evald; Moilanen, Irma; Ebeling, Hanna; Yliherva, Anneli; Gissler, Mika; Parviainen, Tarja; Tani, Pekka; Kawa, Rafal; Vicente, Astrid; Rasga, Célia; Budisteanu, Magdalena; Dale, Ian; Povey, Carol; Flores, Noelia; Jenaro, Cristina; Monroy, Maria Luisa; Primo, Patricia García; Charman, Tony; Cramer, Susanne; Warberg, Christine Kloster; Canal-Bedia, Ricardo; Posada, Manuel; Schendel, Diana – Journal of Autism and Developmental Disorders, 2021
Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for…
Descriptors: Foreign Countries, Autism, Pervasive Developmental Disorders, Adults
Anxiety and Attentional Bias to Threat in Children at Increased Familial Risk for Autism Spectrum Disorder
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Milosavljevic, Bosiljka; Shephard, Elizabeth; Happé, Francesca G.; Johnson, Mark H.; Charman, Tony – Journal of Autism and Developmental Disorders, 2017
Anxiety and threat bias were examined in 6-8-year-old children at familial-risk for Autism Spectrum Disorder (ASD) and low-risk (LR, n = 37) controls. The high-risk (HR) group was divided into those who met diagnostic criteria for ASD (HR-ASD, n = 15) and those who did not (HR-non ASD, n = 24). The HR-ASD group had highest levels of…
Descriptors: Pervasive Developmental Disorders, Autism, Anxiety, At Risk Students
Annual Research Review: Infant Development, Autism, and ADHD--Early Pathways to Emerging Disorders
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Johnson, Mark H.; Gliga, Teodora; Jones, Emily; Charman, Tony – Journal of Child Psychology and Psychiatry, 2015
Background: Autism spectrum disorders (ASD) and attention deficit hyperactivity disorder (ADHD) are two of the most common neurodevelopmental disorders, with a high degree of co-occurrence. Methods: Prospective longitudinal studies of infants who later meet criteria for ASD or ADHD offer the opportunity to determine whether the two disorders share…
Descriptors: Autism, Attention Deficit Hyperactivity Disorder, Pervasive Developmental Disorders, Symptoms (Individual Disorders)
Investigating the Cross-Cultural Validity of "DSM-5" Autism Spectrum Disorder: Evidence from Finnish and UK Samples
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Mandy, William; Charman, Tony; Puura, Kaija; Skuse, David – Autism: The International Journal of Research and Practice, 2014
The recent "Diagnostic and Statistical Manual of Mental Disorders-Fifth Edition" ("DSM-5") reformulation of autism spectrum disorder has received empirical support from North American and UK samples. Autism spectrum disorder is an increasingly global diagnosis, and research is needed to discover how well it generalises beyond…
Descriptors: Foreign Countries, Autism, Pervasive Developmental Disorders, Models
Face Engagement during Infancy Predicts Later Face Recognition Ability in Younger Siblings of Children with Autism
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de Klerk, Carina C. J. M.; Gliga, Teodora; Charman, Tony; Johnson, Mark H. – Developmental Science, 2014
Face recognition difficulties are frequently documented in children with autism spectrum disorders (ASD). It has been hypothesized that these difficulties result from a reduced interest in faces early in life, leading to decreased cortical specialization and atypical development of the neural circuitry for face processing. However, a recent study…
Descriptors: Pervasive Developmental Disorders, Autism, At Risk Persons, Responses
Temperament in the First 2 Years of Life in Infants at High-Risk for Autism Spectrum Disorders
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Clifford, Sally M.; Hudry, Kristelle; Elsabbagh, Mayada; Charman, Tony; Johnson, Mark H. – Journal of Autism and Developmental Disorders, 2013
The current study investigated early temperament in 54 infants at familial high-risk of ASD and 50 controls. Parental report of temperament was assessed around 7, 14 and 24 months of age and diagnostic assessment was conducted at 3 years. The high-risk group showed reduced "Surgency" at 7 and 14 months and reduced "Effortful Control" at 14 and 24…
Descriptors: Autism, Personality Traits, Comparative Analysis, Infants
The Impact of Nonverbal Ability on Prevalence and Clinical Presentation of Language Disorder: Evidence from a Population Study
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Norbury, Courtenay Frazier; Gooch, Debbie; Wray, Charlotte; Baird, Gillian; Charman, Tony; Simonoff, Emily; Vamvakas, George; Pickles, Andrew – Journal of Child Psychology and Psychiatry, 2016
Background: Diagnosis of "specific" language impairment traditionally required nonverbal IQ to be within normal limits, often resulting in restricted access to clinical services for children with lower NVIQ. Changes to DSM-5 criteria for language disorder removed this NVIQ requirement. This study sought to delineate the impact of varying…
Descriptors: Nonverbal Ability, Language Impairments, Incidence, Evaluation Criteria
Quality of Interaction between At-Risk Infants and Caregiver at 12-15 Months is Associated with 3-Year Autism Outcome
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Wan, Ming Wai; Green, Jonathan; Elsabbagh, Mayada; Johnson, Mark; Charman, Tony; Plummer, Faye – Journal of Child Psychology and Psychiatry, 2013
Background: Recent models of the early emergence of autism spectrum disorder (ASD) propose that infant intrinsic risk susceptibilities in behaviour may be amplified by interaction within the early social environment into an increasingly atypical developmental trajectory. This study examines whether 6- and 12-month parent-infant interactions in…
Descriptors: Correlation, Infants, Autism, Pervasive Developmental Disorders
Stability of the Autism Diagnostic Interview-Revised from Pre-School to Elementary School Age in Children with Autism Spectrum Disorders
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Moss, Jo; Magiati, Iliana; Charman, Tony; Howlin, Patricia – Journal of Autism and Developmental Disorders, 2008
This study examined the stability of scores on the ADI-R from pre-school to elementary school age in children with autism spectrum disorders (ASD). Participants were 35 children who, at T1, all had a clinical diagnosis of ASD. On initial assessment (mean age 3.5 years; SD 0.6 years), all met ADI-R algorithm criteria for autism. ADI-R assessments…
Descriptors: Autism, Clinical Diagnosis, Preschool Children, Elementary School Students