The use of social media platforms as a means of data collection for researchers is increasing. With the number of active users of Facebook across the globe exceeding two billion, the platform offers a means to reach and hear from diverse populations and gather information-rich data. Despite an increase of researchers utilising Facebook and publishing their findings, there has been less focus on describing the issues researchers need to think about to undertake their work in line with ethical principles, which is particularly important when engaging people in research. This research note provides a worked example of the practical steps adopted when establishing a Facebook Page and Group to recruit and gather data from individuals receiving care and support. The paper offers guidance for researchers on the issues to consider and provides insights into how using Facebook can be aligned with good research governance practice and ethics approval processes.