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Poston, Denise; Turnbull, Ann; Park, Jiyeon; Mannan, Hasheem; Marquis, Janet; Wang, Mian – Mental Retardation, 2003
Focus groups and individual interviews were conducted with 187 individuals including family members of children with a disability, individuals with a disability, family of children without a disability, service providers, and administrators. Ten domains of family quality of life were identified and described in terms of subdomains, indicators, and…
Descriptors: Children, Disabilities, Early Childhood Education, Elementary Secondary Education
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Wang, Mian; Mannan, Hasheem; Poston, Denise; Turnbull, Ann P.; Summers, Jean Ann – Research and Practice for Persons with Severe Disabilities (RPSD), 2004
The concept of family quality of life has emerged as an important outcome of service provision for children with disabilities and their families. In this article, we report families' perceptions of their advocacy efforts and the impact of these efforts on their family quality of life. A total of 104 family respondents participated in focus groups…
Descriptors: Quality of Life, Focus Groups, Advocacy, Disabilities