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Direct linkKyzar, Kathleen; Brady, Sara; Summers, Jean Ann; Turnbull, Ann – Remedial and Special Education, 2020
Family-professional partnerships are a key support for families of children with disabilities, but little is known about families of children with deaf-blindness. This study examined (a) the factor structures of the Beach Center on Disability Family-Professional Partnership and Family Quality of Life (FQOL) Scales utilizing a national sample of…
Descriptors: Quality of Life, Family Environment, Family Relationship, Deaf Blind
Saito, Yumiko; Turnbull, Ann – Research and Practice for Persons with Severe Disabilities (RPSD), 2007
Augmentative and Alternative Communication (AAC) practice may have both positive and negative impacts on quality of life (QOL) of children with AAC as well as their entire family. Thirteen studies were reviewed to analyze family outcomes and perspectives on AAC practice by using a family quality of life (FQOL) framework comprised of five…
Descriptors: Questionnaires, Quality of Life, Augmentative and Alternative Communication, Children
Hoffman, Lesa; Marquis, Janet; Poston, Denise; Summers, Jean Ann; Turnbull, Ann – Journal of Marriage and Family, 2006
There is currently a lack of reliable scales with which to assess the construct of family quality of life, particularly for families who have children with disabilities. The current work presents 2 studies, including a total of 488 families with children with disabilities, which were conducted to complete the development of a scale to assess…
Descriptors: Psychometrics, Family (Sociological Unit), Quality of Life, Measures (Individuals)
Peer reviewedPoston, Denise; Turnbull, Ann; Park, Jiyeon; Mannan, Hasheem; Marquis, Janet; Wang, Mian – Mental Retardation, 2003
Focus groups and individual interviews were conducted with 187 individuals including family members of children with a disability, individuals with a disability, family of children without a disability, service providers, and administrators. Ten domains of family quality of life were identified and described in terms of subdomains, indicators, and…
Descriptors: Children, Disabilities, Early Childhood Education, Elementary Secondary Education
