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Turnbull, Ann P.; Summers, Jean Ann; Lee, Suk-Hyang; Kyzar, Kathleen – Mental Retardation and Developmental Disabilities Research Reviews, 2007
The purpose of this review is to (a) document the current status of conceptualizing and measuring family outcomes related to having a member with an intellectual disability and (b) determine the extent to which family research focuses on internal family characteristics as contrasted to external family support. The reviewers collected 28 articles…
Descriptors: Family Environment, Mental Retardation, Family Characteristics, Quality of Life
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Wang, Mian; Mannan, Hasheem; Poston, Denise; Turnbull, Ann P.; Summers, Jean Ann – Research and Practice for Persons with Severe Disabilities (RPSD), 2004
The concept of family quality of life has emerged as an important outcome of service provision for children with disabilities and their families. In this article, we report families' perceptions of their advocacy efforts and the impact of these efforts on their family quality of life. A total of 104 family respondents participated in focus groups…
Descriptors: Quality of Life, Focus Groups, Advocacy, Disabilities