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Eskow, Karen Goldrich; Chasson, Gregory S.; Summers, Jean Ann – Journal of Autism and Developmental Disorders, 2019
Home and Community-Based Services (HCBS) Waivers provide support and services to families with a child/youth with autism spectrum disorder (ASD). Research indicates HCBS Waivers are positively related to family quality of life (FQoL) and Child Progress. This study replicated and expanded prior research using propensity score matching of 460…
Descriptors: Autism, Pervasive Developmental Disorders, Family Environment, Quality of Life
Eskow, Karen Goldrich; Summers, Jean Ann – Journal of Applied Research in Intellectual Disabilities, 2019
Background: An important mechanism that provides support and services for families with a child/youth with autism spectrum disorder is the home- and community-based services (HCBS) Waiver authorized by Section 1915(c) of the Social Security Act or Medicaid. Methods: This study used qualitative research methods to explore parent perspectives about…
Descriptors: Autism, Pervasive Developmental Disorders, Youth, Access to Health Care
Kyzar, Kathleen B.; Brady, Sara E.; Summers, Jean Ann; Haines, Shana J.; Turnbull, Ann P. – Exceptional Children, 2016
In this study, the authors examined the moderating effects of partnership on the relationship between services and supports adequacy and family quality of life (FQOL) for families of children with deaf-blindness ages birth to 21. A social-ecological approach enabled examining the impact of disability on the family system. A survey, consisting of…
Descriptors: Deaf Blind, Partnerships in Education, Quality of Life, Family Life
Kyzar, Kathleen; Brady, Sara; Summers, Jean Ann; Turnbull, Ann – Remedial and Special Education, 2020
Family-professional partnerships are a key support for families of children with disabilities, but little is known about families of children with deaf-blindness. This study examined (a) the factor structures of the Beach Center on Disability Family-Professional Partnership and Family Quality of Life (FQOL) Scales utilizing a national sample of…
Descriptors: Quality of Life, Family Environment, Family Relationship, Deaf Blind
Eskow, Karen Goldrich; Chasson, Gregory S.; Summers, Jean Ann – Journal of Autism and Developmental Disorders, 2015
State-specific 1915(c) Medicaid Home and Community-Based Services waiver programs have become central in the provision of services specifically tailored to children with autism spectrum disorders (ASD). Using propensity score matching, 130 families receiving waiver services for a child with ASD were matched with and compared to 130 families…
Descriptors: Autism, Pervasive Developmental Disorders, Scores, Independent Living
Eskow, Karen; Pineles, Lisa; Summers, Jean Ann – Journal of Policy and Practice in Intellectual Disabilities, 2011
This study examined the effect of services provided through Maryland's Home and Community-Based Services Medicaid waiver for children with autism on several outcomes related to families, specifically family quality of life (FQoL) and employment. The purpose of this study was to assess the impact of the services provided through the Maryland autism…
Descriptors: Autism, Quality of Life, Social Services, Children
Epley, Pamela H.; Summers, Jean Ann; Turnbull, Ann P. – Journal of Early Intervention, 2011
Relationships between parent ratings of Part C/early intervention (EI) services and family outcomes for families of young children with disabilities were examined--specifically, the early childhood outcomes (ECO)-recommended family outcomes and family quality of life (FQOL). Measures included the Early Childhood Services Survey, the ECO Center…
Descriptors: Early Intervention, Quality of Life, Disabilities, Young Children
Wang, Mian; Turnbull, Ann P.; Summers, Jean Ann; Little, Todd D.; Poston, Denise J.; Mannan, Hasheem; Turnbull, Rud – Research and Practice for Persons with Severe Disabilities (RPSD), 2004
The field of early intervention has recognized a growing need to study contributing factors of family outcomes such as family quality of life (FQOL). This study of 130 fathers and 234 mothers of families in early childhood programs explores the associations between family income and severity of disability, and fathers' and mothers' satisfaction…
Descriptors: Severity (of Disability), Early Intervention, Quality of Life, Mothers
Wang, Mian; Mannan, Hasheem; Poston, Denise; Turnbull, Ann P.; Summers, Jean Ann – Research and Practice for Persons with Severe Disabilities (RPSD), 2004
The concept of family quality of life has emerged as an important outcome of service provision for children with disabilities and their families. In this article, we report families' perceptions of their advocacy efforts and the impact of these efforts on their family quality of life. A total of 104 family respondents participated in focus groups…
Descriptors: Quality of Life, Focus Groups, Advocacy, Disabilities