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Usher, Lauren V.; DaWalt, Leann S.; Hong, Jinkuk; Greenberg, Jan S.; Mailick, Marsha R. – Journal of Autism and Developmental Disorders, 2020
This study examined trajectories of daily living skills, behavior problems, body mass index (BMI), and health conditions spanning nearly a decade in adolescents and adults with fragile X syndrome (N = 134; age range at study end = 19-49 years), examining influences of sex and autism spectrum disorder (ASD) symptoms. Hierarchical linear modeling…
Descriptors: Adolescents, Adults, Genetic Disorders, Gender Differences
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Hong, Jinkuk; Bishop-Fitzpatrick, Lauren; Smith, Leann E.; Greenberg, Jan S.; Mailick, Marsha R. – Journal of Autism and Developmental Disorders, 2016
We examined factors related to subjective quality of life (QoL) of adults with autism spectrum disorder (ASD) aged 25-55 (n = 60), using the World Health Organization Quality of Life measure (WHOQOL-BREF). We used three different assessment methods: adult self-report, maternal proxy-report, and maternal report. Reliability analysis showed that…
Descriptors: Quality of Life, Adults, Autism, Pervasive Developmental Disorders
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Bishop-Fitzpatrick, Lauren; Hong, Jinkuk; Smith, Leann E.; Makuch, Renee A.; Greenberg, Jan S.; Mailick, Marsha R. – Journal of Autism and Developmental Disorders, 2016
This study aims to extend the definition of quality of life (QoL) for adults with autism spectrum disorder (ASD, n = 180, ages 23-60) by: (1) characterizing the heterogeneity of normative outcomes (employment, independent living, social engagement) and objective QoL (physical health, neighborhood quality, family contact, mental health issues); and…
Descriptors: Quality of Life, Pervasive Developmental Disorders, Normalization (Disabilities), Adults
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Woodman, Ashley C.; Smith, Leann E.; Greenberg, Jan S.; Mailick, Marsha R. – Journal of Autism and Developmental Disorders, 2016
In the present study, we jointly employ and integrate variable- and person-centered approaches to identify groups of individuals with autism spectrum disorders (ASD) who have similar profiles of change over a period of 10 years across three critical domains of functioning: maladaptive behaviors, autism symptoms, and daily living skills. Two…
Descriptors: Autism, Adults, Pervasive Developmental Disorders, Intervention
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Taylor, Julie Lounds; Smith, Leann E.; Mailick, Marsha R. – Journal of Autism and Developmental Disorders, 2014
This study examined the bidirectional relations over time between behavioral functioning (autism symptoms, maladaptive behaviors, activities of daily living) and vocational/educational activities of adults with autism spectrum disorders (ASD). Participants were 153 adults with ASD (M age = 30.2 years) who were part of a larger longitudinal study.…
Descriptors: Adults, Parents with Disabilities, Vocational Education, Autism
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Taylor, Julie Lounds; Mailick, Marsha R. – Developmental Psychology, 2014
The transition from adolescence to adulthood has been shown to be a time of amplified risk for individuals with autism spectrum disorders (ASD). It is unknown, however, whether problems in educational attainment and employment in the years after high school exit represent momentary perturbations in development or a turning point with long-lasting…
Descriptors: Longitudinal Studies, Adults, Vocational Education, Autism
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Taylor, Julie Lounds; Henninger, Natalie A.; Mailick, Marsha R. – Autism: The International Journal of Research and Practice, 2015
This study examined correlates of participation in postsecondary education and employment over 12?years for 73 adults with autism spectrum disorders and average-range IQ whose families were part of a larger, longitudinal study. Correlates included demographic (sex, maternal education, paternal education), behavioral (activities of daily living,…
Descriptors: Longitudinal Studies, Adults, Autism, Pervasive Developmental Disorders
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Esbensen, Anna J.; Mailick, Marsha R.; Silverman, Wayne – American Journal on Intellectual and Developmental Disabilities, 2013
Parental characteristics were significant predictors of health, functional abilities, and behavior problems in adults with Down syndrome ("n" ?=? 75) over a 22-year time span, controlling for initial levels and earlier changes in these outcomes. Lower levels of behavior problems were predicted by improvements in maternal depressive…
Descriptors: Parents, Individual Characteristics, Predictor Variables, Behavior Problems