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Direct linkPetry, Katja; Maes, Bea; Vlaskamp, Carla – Research in Developmental Disabilities: A Multidisciplinary Journal, 2009
Because of a shortage of valid instruments to measure the QOL of people with profound multiple disabilities (PMD), the QOL-PMD was developed. In the present study, possibilities for item reduction as well as the psychometric properties of the questionnaire were examined. One hundred and forty-seven informants of people with PMD participated in the…
Descriptors: Multiple Disabilities, Quality of Life, Construct Validity, Questionnaires
Hostyn, Ine; Maes, Bea – Journal of Intellectual & Developmental Disability, 2009
Background: High quality interactions are of crucial importance for quality of life of persons with profound intellectual and multiple disabilities (PIMD). This literature review describes and synthesises studies addressing the interaction between persons with PIMD and their partners. Method: A computerised literature search using defined…
Descriptors: Multiple Disabilities, Quality of Life, Interaction, Literature Reviews
Petry, Katja; Maes, Bea; Vlaskamp, Carla – Research in Developmental Disabilities: A Multidisciplinary Journal, 2009
The present study focused on the objective components of quality of life (QOL) of people with profound multiple disabilities (PMD). More specific, we aimed at evaluating different dimensions of QOL of people with PMD and investigating the association between their QOL and several personal (age, gender, intellectual capabilities, motor limitations,…
Descriptors: Severe Disabilities, Multiple Disabilities, Health Conditions, Quality of Life
Petry, Katja; Maes, Bea – Journal of Intellectual and Developmental Disability, 2006
Background: The aim of this study was to explore a procedure for drafting individualised profiles of how people with profound multiple disabilities express pleasure and displeasure. Method: There were 6 participants with profound multiple disabilities. The procedure involved an observational analysis of videotaped critical incidents by a…
Descriptors: Multiple Disabilities, Severe Disabilities, Profiles, Psychological Patterns
Maes, Bea; Lambrechts, Greet; Hostyn, Ine; Petry, Katja – Journal of Intellectual & Developmental Disability, 2007
Background: This study provides an overview of empirical research on the effectiveness of quality-enhancing interventions for people with profound intellectual and multiple disabilities (PIMD). Method: Through computerised searches of the PsycINFO and ERIC databases, and using several search criteria specifically relating to the target group and…
Descriptors: Program Effectiveness, Multiple Disabilities, Community Involvement, Client Characteristics
Petry, Katja; Maes, Bea; Vlaskamp, Carla – Journal of Applied Research in Intellectual Disabilities, 2005
Background: This study considered the general validity of the basic domains of quality of life that appear in theoretical models, in relation to people with profound multiple disabilities. The authors examined how parents and direct support staff operationalized these basic domains for people with profound multiple disabilities. They investigated…
Descriptors: Health Promotion, Multiple Disabilities, Severe Disabilities, Severe Mental Retardation
