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Measuring Communication as a Core Outcome in Aphasia Trials: Results of the ROMA-2 International Core Outcome Set Development Meeting
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Wallace, Sarah J.; Worrall, Linda; Rose, Tanya A.; Alyahya, Reem S. W.; Babbitt, Edna; Beeke, Suzanne; de Beer, Carola; Bose, Arpita; Bowen, Audrey; Brady, Marian C.; Breitenstein, Caterina; Bruehl, Stefanie; Bryant, Lucy; Cheng, Bonnie B. Y.; Cherney, Leora R.; Conroy, Paul; Copland, David A.; Croteau, Claire; Cruice, Madeline; Dipper, Lucy; Hilari, Katerina; Howe, Tami; Kelly, Helen; Kiran, Swathi; Laska, Ann-Charlotte; Marshall, Jane; Murray, Laura L.; Patterson, Janet; Pearl, Gill; Quinting, Jana; Rochon, Elizabeth; Rose, Miranda L.; Rubi-Fessen, Ilona; Sage, Karen; Simmons-Mackie, Nina; Visch-Brink, Evy; Volkmer, Anna; Webster, Janet; Whitworth, Anne; Le Dorze, Guylaine – International Journal of Language & Communication Disorders, 2023
Background: Evidence-based recommendations for a core outcome set (COS; minimum set of outcomes) for aphasia treatment research have been developed (the Research Outcome Measurement in Aphasia--ROMA, COS). Five recommended core outcome constructs: communication, language, quality of life, emotional well-being and patient-reported…
Descriptors: Interpersonal Communication, Communication Skills, Aphasia, Foreign Countries
'Emotion Is of the Essence. … Number One Priority': A Nested Qualitative Study Exploring Psychosocial Adjustment to Stroke and Aphasia
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Moss, Becky; Northcott, Sarah; Behn, Nicholas; Monnelly, Katie; Marshall, Jane; Thomas, Shirley; Simpson, Alan; Goldsmith, Kimberley; McVicker, Sally; Flood, Chris; Hilari, Katerina – International Journal of Language & Communication Disorders, 2021
Background: Stroke and aphasia can have a profound impact on people's lives, and depression is a common, frequently persistent consequence. Social networks also suffer, with poor social support associated with worse recovery. It is essential to support psychosocial well-being post-stroke, and examine which factors facilitate successful adjustment…
Descriptors: Neurological Impairments, Aphasia, Adjustment (to Environment), Well Being
Psychometric Properties of Discourse Measures in Aphasia: Acceptability, Reliability, and Validity
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Pritchard, Madeleine; Hilari, Katerina; Cocks, Naomi; Dipper, Lucy – International Journal of Language & Communication Disorders, 2018
Background: Discourse in adults with aphasia is increasingly the focus of assessment and therapy research. A broad range of measures is available to describe discourse, but very limited information is available on their psychometric properties. As a result, the quality of these measures is unknown, and there is very little evidence to motivate the…
Descriptors: Psychometrics, Aphasia, Measures (Individuals), Discourse Analysis
A Systematic Review of Semantic Feature Analysis Therapy Studies for Aphasia
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Efstratiadou, Evangelia Antonia; Papathanasiou, Ilias; Holland, Rachel; Archonti, Anastasia; Hilari, Katerina – Journal of Speech, Language, and Hearing Research, 2018
Purpose: The purpose of this study was to review treatment studies of semantic feature analysis (SFA) for persons with aphasia. The review documents how SFA is used, appraises the quality of the included studies, and evaluates the efficacy of SFA. Method: The following electronic databases were systematically searched (last search February 2017):…
Descriptors: Semantics, Aphasia, Outcomes of Treatment, Speech Therapy
Cultural Adaptation and Psychometric Testing of the Scenario Test UK for People with Aphasia
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Hilari, Katerina; Galante, Lara; Huck, Anneline; Pritchard, Madeleine; Allen, Lucy; Dipper, Lucy – International Journal of Language & Communication Disorders, 2018
Background: This study explores the psychometric properties of The Scenario Test UK, a culturally adapted version of the Dutch original (The Scenario Test) developed by van der Meulen "et al." in 2010, which evaluates functional, daily-life communication in aphasia. The Scenario Test assesses communication in an interactive context with…
Descriptors: Psychometrics, Foreign Countries, Aphasia, Test Reliability
Reviewing the Quality of Discourse Information Measures in Aphasia
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Pritchard, Madeleine; Hilari, Katerina; Cocks, Naomi; Dipper, Lucy – International Journal of Language & Communication Disorders, 2017
Background: Discourse is fundamental to everyday communication, and is an increasing focus of clinical assessment, intervention and research. Aphasia can affect the information a speaker communicates in discourse. Little is known about the psychometrics of the tools for measuring information in discourse, which means it is unclear whether these…
Descriptors: Aphasia, Measures (Individuals), Speech Communication, Psychometrics
Treatment Integrity of Elaborated Semantic Feature Analysis Aphasia Therapy Delivered in Individual and Group Settings
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Kladouchou, Vasiliki; Papathanasiou, Ilias; Efstratiadou, Eva A.; Christaki, Vasiliki; Hilari, Katerina – International Journal of Language & Communication Disorders, 2017
Background & Aims: This study ran within the framework of the Thales Aphasia Project that investigated the efficacy of elaborated semantic feature analysis (ESFA). We evaluated the treatment integrity (TI) of ESFA, i.e., the degree to which therapists implemented treatment as intended by the treatment protocol, in two different formats:…
Descriptors: Aphasia, Semantics, Speech Therapy, Group Therapy
What Factors Predict Who Will Have a Strong Social Network Following a Stroke?
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Northcott, Sarah; Marshall, Jane; Hilari, Katerina – Journal of Speech, Language, and Hearing Research, 2016
Purpose: Measures of social networks assess the number and nature of a person's social contacts, and strongly predict health outcomes. We explored how social networks change following a stroke and analyzed concurrent and baseline predictors of social networks 6 months poststroke. Method: We conducted a prospective longitudinal observational study.…
Descriptors: Predictor Variables, Social Networks, Neurological Impairments, Longitudinal Studies
How Do Speech-and-Language Therapists Address the Psychosocial Well-Being of People with Aphasia? Results of a UK Online Survey
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Northcott, Sarah; Simpson, Alan; Moss, Becky; Ahmed, Nafiso; Hilari, Katerina – International Journal of Language & Communication Disorders, 2017
Background: The psychosocial impact of stroke and aphasia is considerable. Aims: To explore UK speech-and-language therapists' (SLTs) clinical practice in addressing the psychological and social needs of people with aphasia, including their experiences of working with mental health professionals. Methods & Procedures: A 22-item online survey…
Descriptors: Foreign Countries, Aphasia, Speech Language Pathology, Mental Health
Supporting People with Aphasia to "Settle into a New Way to Be": Speech and Language Therapists' Views on Providing Psychosocial Support
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Northcott, Sarah; Simpson, Alan; Moss, Becky; Ahmed, Nafiso; Hilari, Katerina – International Journal of Language & Communication Disorders, 2018
Background: People with aphasia are at risk of becoming depressed and isolated. Online surveys have found that the majority of speech and language therapists (SLTs) lack confidence in addressing the psychological needs of people with aphasia. Aims: To explore how SLTs conceptualize the scope of their role; barriers and facilitators to SLTs…
Descriptors: Aphasia, Speech Language Pathology, Allied Health Personnel, Therapy
Health-Related Quality of Life in People with Severe Aphasia
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Hilari, Katerina; Byng, Sally – International Journal of Language & Communication Disorders, 2009
Background: Health-related quality of life (HRQL) measures are increasingly used to help us understand the impact of disease or disability on a person's life and to measure the effectiveness of interventions. A small number of studies have looked at perceived HRQL in people with mild or moderate aphasia. They report that reduced HRQL is associated…
Descriptors: Health, Quality of Life, Context Effect, Aphasia