ERIC Number: EJ1364004
Record Type: Journal
Publication Date: 2022-Oct
Pages: 33
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1934-9491
EISSN: EISSN-1934-9556
Available Date: N/A
Parental Perceptions of Service Access for Transition-Aged Youth with Autism during COVID-19
Burke, Meghan M.; Cheung, W. Catherine; Li, Chak; DaWalt, Leann; Segal, Jordan; Taylor, Julie Lounds
Intellectual and Developmental Disabilities, v60 n5 p369-381 Oct 2022
Services are critical for youth with autism spectrum disorder (ASD), especially during the transition to adulthood. Under the best of circumstances, though, it can be difficult to access needed adult services. With COVID-19, services were more difficult to obtain and retain. In this study, we explored parent perceptions of accessing new services and maintaining current services during the first year of the COVID-19 pandemic. Structured interviews were conducted with 65 parents of transition-aged youth (aged 16-26) with ASD living in three states (IL, TN, and WI) in the United States. None of the participants reported receiving new services during the pandemic, and many struggled to access services via online applications. In addition, participants reported that service suspensions and changes in modality (e.g., from in-person to telehealth) were spearheaded by professionals and not families. Participants, especially those in TN, were more likely to pay out-of-pocket for services during the COVID-19 pandemic to compensate for service disruptions. Implications for research and practice are discussed.
Descriptors: Students with Disabilities, Autism Spectrum Disorders, Parent Attitudes, COVID-19, Pandemics, Adolescents, Young Adults, Services, Access to Health Care, Access to Education, Telecommunications
American Association on Intellectual and Developmental Disabilities. P.O. Box 1897, Lawrence, KS 66044-1897. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: https://meridian.allenpress.com/aaidd
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Illinois; Tennessee; Wisconsin
Grant or Contract Numbers: N/A
Author Affiliations: N/A