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Ames, Jennifer L.; Mahajan, Arjun; Davignon, Meghan N.; Massolo, Maria L.; Croen, Lisa A. – Journal of Autism and Developmental Disorders, 2023
Transitioning autistic youth from pediatric to adult healthcare requires coordination of multiple stakeholders, including youth, caregivers, and pediatric and adult care providers, whose interests at times overlap but often differ. To understand barriers and facilitators to inclusive transition experiences, we conducted thematic analysis of…
Descriptors: Inclusion, Autism Spectrum Disorders, Youth, Pediatrics
Ames, Jennifer L.; Massolo, Maria L.; Davignon, Meghan N.; Qian, Yinge; Cerros, Hilda J.; Croen, Lisa A. – Autism: The International Journal of Research and Practice, 2021
Health care continuity during the transition from pediatric to adult care is critical to helping individuals with autism spectrum disorders manage complex medical and psychiatric co-morbidities that start in childhood and evolve with age. We conducted a brief online survey of pediatric and adult providers at Kaiser Permanente Northern California,…
Descriptors: Autism, Pervasive Developmental Disorders, Primary Health Care, Youth
Ames, Jennifer L.; Massolo, Maria L.; Davignon, Meghan N.; Qian, Yinge; Croen, Lisa A. – Autism: The International Journal of Research and Practice, 2021
Youth with autism spectrum disorder often have complex medical needs. Disruptions of healthcare during the transition from pediatric to adult healthcare may put youth with autism spectrum disorder at higher risk of medical emergencies and high medical costs. We conducted a study among transition-age youth (14-25 years old) receiving healthcare at…
Descriptors: Autism, Pervasive Developmental Disorders, Youth, Adolescents