Results of a survey of 2,800 parents of children with disabilities found that families are essentially pleased with their respite services, but are dissatisfied with the services' lack of flexibility, arbitrary limits on use, inability to respond to crises, lack of parental voice in forming or reforming services, etc. (JDD)

This study of 78 mothers of mentally retarded children and adults found that respite care acts as a differential service that can enhance coping resources and is of most benefit to high self-esteem mothers of young developmentally disabled children, especially as a home-based model. (Author/JDD)

The booklet is designed to help people interested in babysitting for children with special needs. A brief explanation of each of the four disabilities covered by this guide (autism, cerebral palsy, epilepsy, and mental retardation) is followed by a checklist designed to elicit information on practical issues from parents, such as communication…

The newsletter offers perspectives on the provision of family support services for families with disabled members. An introductory article by Madeleine Will, Assistant Secretary for Special Education and Rehabilitative Services, stresses the impressive coping skills exhibited by many such families and their relationship to service professionals.…

The manual covers the design and implementation of respite care services for families with developmentally disabled members. An introductory chapter examines the concept of respite care, notes the benefits for families, providers, and community residential programs, and places the service as one part of a comprehensive array of family support…

In spite of the growing awareness and development of respite services, many families in need of them have little or no access. This is especially true for families whose children have emotional handicaps. A rationale for respite services supports parents' entitlement to respite care, its importance to all family members, and its help in improving…

A survey of 190 families caring for people with mental retardation in North Wales addressed caregivers' assessments of unmet needs, particularly respite care needs; the relation between management of dependency and unmet needs; characteristics of families expressing the greatest need for respite care; and implications for policy and practice.…

Parents of 36 autistic children were assessed on child functioning and family stress variables in relation to use of respite care services. Results suggest that parents with more difficult children need and use respite care more than others. Nonusers of respite care reported a higher perception of social support than users. (JDD)

This public awareness package is designed to help crisis nursery and respite care programs for families with special needs children to increase the visibility of the programs' services, increase use of their services by families, enhance collaboration with other agencies, and assist with fund-raising efforts. It describes the advantages and uses…

This fact sheet points out that knowledge of the process of grief (defined as one's own personal experience of loss) and ways of helping individuals and families cope with their loss experiences can be an invaluable asset to crisis nurseries and respite care programs and their service providers. The fact sheet lists the emotions of grief, and…

The project sought to determine the content and form of materials that would enable parents of children with disabilities to become informed critical consumers of respite services. Project activities included establishment and utilization of a national advisory panel; an indepth review of the literature on family supports, systems change, and…

Two newsletters focus on alternatives for community living and approaches to teaching social skills to children and youth with disabilities. The first issue provides information on some family support services and community-based living arrangements that are currently available for children with severe and profound handicaps or chronic illnesses.…

This article discusses the role of organized religion in providing respite services to families of children with disabilities. Respite programs using church volunteers are seen as an opportunity for new and effective partnerships between secular service systems and the religious community. Model programs are described. (PB)

This conference proceedings reports on a 1989 meeting addressing respite care for families of children with mental, emotional or behavioral disorders. The conference addressed: (1) respite care concepts, programs, and issues; and (2) planning for designing, financing, and implementing state and local respite programs. The report contains the…

Literature indicating high rates of abuse in this population is reviewed, as is literature indicating high rates of developmental disabilities in child victims of abuse. Problems in data collecting practices are noted. Reasons for these children's greater risk for abuse are identified, including child attributes, stress, parent vulnerabilities,…