These guidelines were written to help families coordinate the health care that may be needed by a child with spina bifida. The booklet begins with general information about spina bifida. It then discusses the goals of health care, the health care team, the importance of periodic health care, and record keeping procedures. The child's health care…

This booklet contains guidelines to help families coordinate health care of a child with diabetes. The first section provides general information covering what diabetes mellitus-Type I is, the symptoms of diabetes, causes of Type I diabetes, and effects of diabetes. A section on health care focuses on the membership and functions of the Family…

This guide describes 79 programs and services for children in Iowa. Each program description usually includes a brief program overview and information on age requirements and eligibility, specific services provided, any mandated services, costs, where to apply, and the responsible agency. The programs are grouped into the following categories:…

These guidelines were written to help families coordinate the health care that may be needed by a child with congenital heart disease. The booklet begins with general information about congenital heart disease. It then discusses the goals of health care, the health care team, the importance of periodic health care, and record keeping procedures.…

This booklet contains guidelines to help families coordinate health care of a child with asthma. The first section provides general information covering what asthma is, the signs and symptoms of asthma, effects of asthma, and the use and effects of various medications. A section on health care focuses on the use of the Family Centered Health Care…

Twelve 1996 issues of "Exceptional Parent" magazine provide a variety of articles and resources on parenting the child or young adult with a disability. The January issue is a resource guide, with directories of national organizations, associations, products, and services. The February issue focuses on early childhood, including articles…

Designed for Massachusetts parents and adolescents with special health needs, this booklet provides information on the transition to adulthood. It covers four major areas of adulthood: health care, education, employment, and recreation. It includes: (1) a family fact sheet on health care transition that explains important issues and lists…