This is the first article in a year long series that presents the experiences of a fictitious couple, Amita and Samir, as they learn to adapt to the reality of having a premature baby with special needs. Doris, the fictitious nurse who took care of baby Anjali in the neonatal intensive care unit (NICU), has had ten years of experience working in…

This guide gives youth with disabilities and their families an overview of some of the major elements of the transition planning process. It introduces families to the adult service system that will provide supports and services after high school. Each chapter is intended to encourage families to be proactive in the planning process. The workbook…

These guidelines were written to help families coordinate the health care that may be needed by a child with spina bifida. The booklet begins with general information about spina bifida. It then discusses the goals of health care, the health care team, the importance of periodic health care, and record keeping procedures. The child's health care…

This booklet contains guidelines to help families coordinate health care of a child with diabetes. The first section provides general information covering what diabetes mellitus-Type I is, the symptoms of diabetes, causes of Type I diabetes, and effects of diabetes. A section on health care focuses on the membership and functions of the Family…

These guidelines were written to help families coordinate the health care that may be needed by a child with congenital heart disease. The booklet begins with general information about congenital heart disease. It then discusses the goals of health care, the health care team, the importance of periodic health care, and record keeping procedures.…

This booklet contains guidelines to help families coordinate health care of a child with asthma. The first section provides general information covering what asthma is, the signs and symptoms of asthma, effects of asthma, and the use and effects of various medications. A section on health care focuses on the use of the Family Centered Health Care…

This heavily illustrated volume is a reference book intended to bring together basic information to help community health workers, rehabilitation workers, and families in rural areas of developing countries meet the needs of village children with a wide range of disabilities. Part 1, "Working with the Child and Family," reviews the prevention of…