This study examines the difficulties encountered by parents caring for pre-adolescent children who have severe multiple health problems. Working within the frameworks of narrative psychotherapy (Spence, 1982; Viederman & Perry, 1980; Vitz, 1992; Benjamin, 1998), the researcher examined parents' discourses and identified the strategies they…

This is the first article in a year long series that presents the experiences of a fictitious couple, Amita and Samir, as they learn to adapt to the reality of having a premature baby with special needs. Doris, the fictitious nurse who took care of baby Anjali in the neonatal intensive care unit (NICU), has had ten years of experience working in…

This manual was developed for use in foster parents' day-to-day life with the children in their care. It gives them practical information on topics like medical care, payments, and the role of the court, and also provides guidance on areas like welcoming a child, discipline, and parent visits. The manual emphasizes the role of foster parents in…

Adolescence is a time for dreaming--for youth to imagine and set a course for the future. High school students naturally spend time imagining the future--if and where to continue their education, to find a job or pursue a career, to move away from home, or to start a family. The Individuals with Disabilities Education Act (IDEA) includes a process…

The booklet presents papers from a December 1982 workshop on specific problems in caring for ventilator-dependent children (children with respiratory distress due to prematurity, low birth weight or developmental immaturity). Following excerpts from the keynote address by C. Everett Koop, the U.S. Surgeon General, model programs from Pennsylvania,…

Programs and centers which use a multidisciplinary approach to treat the special developmental and biomedical needs of individuals with Down's syndrome are described, and the locations of several centers are presented as well as a guide to medical problems common in such individuals. (CB)

These guidelines were written to help families coordinate the health care that may be needed by a child with spina bifida. The booklet begins with general information about spina bifida. It then discusses the goals of health care, the health care team, the importance of periodic health care, and record keeping procedures. The child's health care…

This booklet contains guidelines to help families coordinate health care of a child with diabetes. The first section provides general information covering what diabetes mellitus-Type I is, the symptoms of diabetes, causes of Type I diabetes, and effects of diabetes. A section on health care focuses on the membership and functions of the Family…

These guidelines were written to help families coordinate the health care that may be needed by a child with congenital heart disease. The booklet begins with general information about congenital heart disease. It then discusses the goals of health care, the health care team, the importance of periodic health care, and record keeping procedures.…

This guide provides school leaders with a framework and tools for developing and implementing a comprehensive school health program. Theoretical and scientific information relating to students' needs is outlined, and approaches that have proven successful in other schools are described. The book is divided into three parts: The first, "Why…

The five chapters in this handbook, intended for parents of children entering kindergarten for the first time, offer suggestions about how parents can help their child get ready for school and make starting kindergarten a successful and happy event. Chapter 1 describes when learning begins and offers tips for helping children who are starting…

This booklet contains guidelines to help families coordinate health care of a child with asthma. The first section provides general information covering what asthma is, the signs and symptoms of asthma, effects of asthma, and the use and effects of various medications. A section on health care focuses on the use of the Family Centered Health Care…

The five chapters in this handbook, intended for parents of children entering kindergarten for the first time, offer suggestions about how parents can make starting kindergarten a successful and happy event for their child, and how parents can help their child get ready for school. The first chapter contains sections that describe when learning…

This handbook offers guidelines to help parents prepare adolescent children with chronic illnesses or disabilities for independent management of their health care needs. In each chapter, guidelines for handling transition issues are presented in the context of the experiences and reactions of actual parents. Each chapter concludes with a summary…

This document contains a compilation of articles that have been assembled because of their potential for enhancing understanding of rural health care issues and for their unwavering high standards. The articles promote high quality research in an area which is rapidly becoming a legitimate and recognized field of inquiry among scholars. Besides…